Aa
about Refib and..
Hi, My name is Almendra , my doctor diagnosed me MS almost two moths ago due to some numbness i had on the right side of my body , the instant he saw the MRI and compare with a 2 year ago MRI i had, he told me i had this disease..Well at the moment i just finished the two common test ( spinal tap and evoked potential) i had some difficulties due to the spinal tap.. excruciating back pain and headache but now is just the headache that i reaaally hope it goes away this days.
Actually I had a few doubs about rebif that is the medicine that my neuro wants me to take.. I will, off couse, ask him but i really wanted to know a little from the perspective of a person who is taking it . Im studying at the moment, well i will in a few months , I left university this cicle due to the situation , but I wanted to know if it will bring me some difficulties such as depression, been tired, etc ,etc another thing , my doctor told me that its 3 times a week ... and i've read that usually an auto-injector is available to do it. Is it complicated ?
Last thing... srry if its too much! Is true that hot weather affecs all patiens? I live in actually in Peru and the city i live is not really hot on summer ( 25-30° top ), but i'll be coming back home on summer ( december) and im very freak out about that .. i really love going to the beach and i dont know if this will make it possible. Thanks !
Actually I had a few doubs about rebif that is the medicine that my neuro wants me to take.. I will, off couse, ask him but i really wanted to know a little from the perspective of a person who is taking it . Im studying at the moment, well i will in a few months , I left university this cicle due to the situation , but I wanted to know if it will bring me some difficulties such as depression, been tired, etc ,etc another thing , my doctor told me that its 3 times a week ... and i've read that usually an auto-injector is available to do it. Is it complicated ?
Last thing... srry if its too much! Is true that hot weather affecs all patiens? I live in actually in Peru and the city i live is not really hot on summer ( 25-30° top ), but i'll be coming back home on summer ( december) and im very freak out about that .. i really love going to the beach and i dont know if this will make it possible. Thanks !
Hi! thak you so much for all ur answers I really apreciate it. Well I guess somethings as head depends of any person. Today I got the Rebif kit with the injector and all the specifications , well I guess today i'll be reading to find out a little bit more. I'm new around here but I really like it becasue there's a ton of information that any MS patient could find really usefull. I will probably have some new doubts about Rebif once i get the first shot and I really hope find some answers here . Thanks!
Hi Gigi and welcome. I have been on rebif for 8 months, and have gotten more used to the side effects and manage them pretty well with advil and tylenol. I don't use the autoinjector. I couldn't really be bothered with all the pieces and figuring out how to use it! (Yes I'm a bit impatient!). The company that makes REBIF has a number that you can call to speak to a nurse anytime you have questions re Rebif. I called a few times in the beginning and found them to be very helpful.
Hot weather and I don't mix these days. AND I can't stand to be in the sun. Your body will let you know if it doesn't like the heat. It can make your symptoms of MS more pronounced.
Good luck to you!
Hot weather and I don't mix these days. AND I can't stand to be in the sun. Your body will let you know if it doesn't like the heat. It can make your symptoms of MS more pronounced.
Good luck to you!
Sorry, forgot you asked about heat intolerance too...
Not everyone is affected by heat. If you haven't had a problem w/it then by all means go through life and enjoy what you love!
If you find you become somewhat intolerant and you feel an increase in symptoms get out of the heat to cool down. Many find the symptoms will pass. They call these episodes pseudo exacerbations and once you remove the cause the attack-like symptoms fade.
I very much enjoy my sun time too so I still get it in lower doses and I do just fine.
Hope this helps...
-shell
Not everyone is affected by heat. If you haven't had a problem w/it then by all means go through life and enjoy what you love!
If you find you become somewhat intolerant and you feel an increase in symptoms get out of the heat to cool down. Many find the symptoms will pass. They call these episodes pseudo exacerbations and once you remove the cause the attack-like symptoms fade.
I very much enjoy my sun time too so I still get it in lower doses and I do just fine.
Hope this helps...
-shell
I take Rebif with no problems. I was warned it could cause depression but it hasn't bothered me. I do know that many that take the shots do have site reactions (like little hives). Taking two Advil's an hour before the shot helps many. I used their auto injector at first but later learned I would rather just give the shot without it. Truly, I found it easier than messing with the thing.
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Sorry for your diagnosis. The side affects mentioned in the literature can and do happen. I'm a Rebif user for 3 years now and do very well. My site reactions are just a warm (to touch) pink about the size of a silver dollar.
I inject straight up without the autoinjector but I many people use the auto and it works very well for them.
Like all meds it's important to weigh out the benefits and risks. What your doctor should do before starting the med is order some baseline labs. These labs will include liver enzymes, CBC to measure your blood counts and thyroid. Periodically and especially 3 months into the injections labs will be ordered again to make sure all counts are in good order.
I take a naproxen and did get some headaches. The flu-like affects were nothing comparible to the real flu. I moreso just got a little achey as if I completed a small workout - really no biggy.
If your mind is turmoiling over the decision. Remember this, you can always switch meds if you find over time it's not working out for you. No matter what you choose, (short of an allergic reaction or blood changes, etc) where DMDs are concerned I encourage to give all a fair shake of months for your body to get use to it.
Please ask anything - there are a good handful of Rebif users on the forum.
Thanks for joining us!
-Shell