Aa
any one
what is PPMS i have RRMS and didnt even know it was called that till this past Augest and ive had MS for 20 years now boy do i feel dumb i just thought u eather had heat sensitive or cold sensitive mom cold and me heat sensitive so for all my years liveing with MS keeping my head in the sand moveing on and egnoreing the MS side til now that i have to take Copaxone shots every day
so can u all tell me what all the abreavitions mean sorry im so dumb and slow on the up take with MS i tried so hard to not have it that when i had to face it im in the dark u think id be better at this now that im 20 years in but im sooooooooo not its like im just being dx witrh it not 20 years in but all my dr papers have the date marked 1990 im so pathatic lol can some one lend me a smart stick i need hit a frew times with it lol
any help would be great
so can u all tell me what all the abreavitions mean sorry im so dumb and slow on the up take with MS i tried so hard to not have it that when i had to face it im in the dark u think id be better at this now that im 20 years in but im sooooooooo not its like im just being dx witrh it not 20 years in but all my dr papers have the date marked 1990 im so pathatic lol can some one lend me a smart stick i need hit a frew times with it lol
any help would be great
Thank you all for ur info sorry i didnt get back here before now had some virises on this thing and did want to make every one's computer get sick lol so IM BACK lol ok every one run and hide now im trying to but its hard to do and type at same time lol
HI,
Just to say, PPMS has no attacks. There is progression from the start. Sometimes it is slow and steady, sometimes there is a rapid decline to disability.
You may have heard of Secondary Progressive MS as this is what most people who have Relapsing Remitting MS progress to over time. It is similar to Primary Progressive MS in that things do not resolve. Some people continue to have relapses but inbetween they do not get better, others no longer have relapses and just steadily get worse.
There is also Progressive Relapsing which as the name suggests it is progressive from onset but unlike PPMS there are relapses.
There are also Borderline forms of MS such as Devics (now considered a seperate disease), Marburg MS, Balo concentris. I could go on!
Some people also believe that a small proportion of people with MS have a benign form, but this can not be diagnosed as such until many years later. MS remains very unpredictable no matter what type you have. Even if you have the same as someone else, no two people have exactly the same disease course.
Just to say, PPMS has no attacks. There is progression from the start. Sometimes it is slow and steady, sometimes there is a rapid decline to disability.
You may have heard of Secondary Progressive MS as this is what most people who have Relapsing Remitting MS progress to over time. It is similar to Primary Progressive MS in that things do not resolve. Some people continue to have relapses but inbetween they do not get better, others no longer have relapses and just steadily get worse.
There is also Progressive Relapsing which as the name suggests it is progressive from onset but unlike PPMS there are relapses.
There are also Borderline forms of MS such as Devics (now considered a seperate disease), Marburg MS, Balo concentris. I could go on!
Some people also believe that a small proportion of people with MS have a benign form, but this can not be diagnosed as such until many years later. MS remains very unpredictable no matter what type you have. Even if you have the same as someone else, no two people have exactly the same disease course.
Hello and welcome to this forum. In short, here is the answer to your question:
PPMS - Primary Progressive Multiple Sclerosis
SPMS - Secondary Primary Progressive
PRMS - Progressive Relapsing
The national MS Society has a good page explaining the different types of ms:
http://www.nationalmssociety.org/about-multiple-sclerosis/progressive-ms/index.aspx
Another great resource of info is located in the "Health Pages" section on this page, yellow icon, right upper corner.
Again, welcome and come back and ask as many questions as you like.
PPMS - Primary Progressive Multiple Sclerosis
SPMS - Secondary Primary Progressive
PRMS - Progressive Relapsing
The national MS Society has a good page explaining the different types of ms:
http://www.nationalmssociety.org/about-multiple-sclerosis/progressive-ms/index.aspx
Another great resource of info is located in the "Health Pages" section on this page, yellow icon, right upper corner.
Again, welcome and come back and ask as many questions as you like.
COMMUNITY LEADER
Sorry I lost my smart stick, and what i've been left with is on the fritz.
As i understand it, in RRMS an attack happens, then you get better, an attack happens, then you get better etc, over time your not able to fully recover anymore and your left with a little bit more to deal with. Each attack exaserbates your old symptoms and often brings along a new one, when the attack stops you recover as much as your brain allows and then you get use to your new reality, until the next one. DMD's
PPMS is primary progressive MS, it starts and continues on its own tragectory with out any getting better, each attack exaserbates your old symptoms and often brings along a new one, when it stops your symptoms stabalise but you dont recover, you get use to your new reality, until the next one. NO DMD's
If you look at the top right, yellow icon its the health pages, lots of great pages on MS, check it out, you've got about 20 yrs of catching up to do, though i imagine what you were told 20 years ago is so old school you'll be glad if you've fogotten most of it, well worth reading.
Cheers.......JJ
As i understand it, in RRMS an attack happens, then you get better, an attack happens, then you get better etc, over time your not able to fully recover anymore and your left with a little bit more to deal with. Each attack exaserbates your old symptoms and often brings along a new one, when the attack stops you recover as much as your brain allows and then you get use to your new reality, until the next one. DMD's
PPMS is primary progressive MS, it starts and continues on its own tragectory with out any getting better, each attack exaserbates your old symptoms and often brings along a new one, when it stops your symptoms stabalise but you dont recover, you get use to your new reality, until the next one. NO DMD's
If you look at the top right, yellow icon its the health pages, lots of great pages on MS, check it out, you've got about 20 yrs of catching up to do, though i imagine what you were told 20 years ago is so old school you'll be glad if you've fogotten most of it, well worth reading.
Cheers.......JJ
Hi Melissa, I'm so sorry you had to start those meds and have to stick yourself with needles but I am glad you did go back to the doc because now you can hopefully find some relief and get better!!!! Yay!!!! You are not pathetic and all that stuff you said, I think you are funny and sweet and your accent is truly wonderful!!!! I'm sure you were just scared like I am and many of the others here I'm sure are too!!! We all fear the unknown, but it's good you took control!!! Good gurl!!! I just had to tell you how I felt and my heart goes out to you!!! I'm sure some of the others would be better at explaining the ppms and rpms!! Take care honey!!!
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