Need advice....appt tomorrow

[luvnGod]

Hi Everyone,

I met with my new neurologist in July I believe, and b/c I have had the diagnosis of Celiac Disease for the past 2 years, he wanted to be sure the neurological symptoms weren't from the Celiac...my new gastro doctor retested the celiac and concluded the neurological symptoms were not related.  SO, I go back to see the neuro tomorrow morning.  I have been on this roller coaster ride since 2007, that I know of and I'm to the point, after this last flare up that enough is enough.  

Last year I had a normal brain MRI and suspicious spinal MRI that when redone was ruled normal as well as bloodwork.  Have ruled out many things including Lyme.   Do you think I should go tomorrow asking to redo MRI's since it has been a year?  What other tests would you recommend I insist on?  This last flare up that ended last week had new symptoms I haven't had before.  Numbness and tingling have seemed to spread to new areas.  

QUESTION...Is it possible to have many flare ups in a year...how long do they typically last.  I'm asking because when I first met this neurologist, he looked at my symptoms and time line and said he typically doesn't see those with MS having so many flare ups....some were just a month apart or several weeks, others longer.  Over the summer I had what I felt was a flare up that lasted several days and then I was good until the week before last.  It lasted a week.  I always have some sort of symptom, but I could clearly notice a difference, serious fatigue, weakness, pain behind my right eye, left leg from toes to hip were pins and needles, leg stiff, I had a limp, fingers up to my shoulder (again on left side) were pins and needles and it spread to my trunk, shock feeling seemed to trigger it all.

Sorry so long, but I truly appreciate your advice!  

Blessings to all of you!
Stacie

[Lulu54]

Good news that your doc is on top of this - here's hoping it all goes well and helps with answers.

[luvnGod]

Brain and C-spine MRI set for next Wednesday the 21st and I am seeing an opthamologist at 7:30 am tomorrow morning.  So glad more is being done!!!!  Thank you for your thoughts and simply responding.  Means so much to me!!

[sllowe]

Yay!!!!!!!!

So happy to read this :) Blessings back to you, and hopefully the office will take care of what they need to in terms of lining up the imaging, etc.

Hang in there girl. You are in good care :)

[luvnGod]

WOW sllowe!  It was just as you said....it was a thorough visit and the doc did ask all the questions!  Lukily I had typed up each day adn the symptoms that I had had during this latest flare up.  He looked it over and began asking questions.  He was concerned that new symptoms have appeared and it was obvious there was inflammation happening in my body.  He said he feels it's very important at this point to schedule another MRI of my brain and cervical spine since it had been a year and he would like to compare them.  He also suggested a LP and wants me to see an opthamologist.  I pray this can be done ASAP, insurance is going to be the deciding factor.  They gave the doctors a hard time the last go around.  

Thank you so much for responding and I appreciate your thoughts and kind words!  

Blessings to you!
Stacie

[sllowe]

Hi there,

Your gi doc should have sent the neuro a letter ref. the symptoms, since he wanted to be clear about knowing. Do you know if one was sent?

I do not think you will have to ask to be rescanned, the doctor should make that determination as well as what other tests should be ordered based on what is discovered today.

Let us know how the appt. goes, and do your best to just describe to the doc what you are currently experiencing and go from there.

Wishing you a thorough visit, Stacie one where the doc asks all the questions and works toward getting to the bottom of the problem :)