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copaxone for their ms
hi everyone, i was wondering if anyone takes copaxone for their ms?
It is like a bad dream. I was just diagnosed and started copaxon this week and just finished yesterday my second shot. I was always healthy as well and it is a huge thing to digest. It is hard for others to understand. You look like a normal healthy person but feel like hell inside. Trying to get words out and concentrate when I have alwasy been very articulate in my career and managing my staff is just crap.. (how's that for articulate!?) the exhaustion I think is the worst and then of course barely being able to type after about noon everyday at my office becuase my hands are shaking and tingling so bad. It makes me feel bad to complain to my signifigant other becuase I feel like it is all I do. support is hard to gain with a disease that is so misunderstood unless you have it. :(
I'm on Copaxone too. I've developed a medication routine that is part of my day now. It helps me keep focused on one dose at a time (it's not good for me personally to drift off into how long it's been or will be). I could easily lose site of why I'm injecting every day since the benefit isn't immediately apparent.
I made a reasoned decision to use Copaxone when I was diagnosed. I trust this remains the best disease fighting drug for me until my body or the doctor suggest different. I take a lot of drugs and supplements to relieve symptoms and remain functional. Copaxone is the one drug that helps me fight MS progression.
Have your kids ever told you life isn't fair? They are right. Life isn't always fair. Most days we whine about little inequities and move on. Right now, MS has thrown you smack dab into the 3D reality of unfairness. Do whatever is necessary to keep you moving forward in this moment with your daily life and treatment. Much happiness remains ahead in your life. You will catch up to it again once you wrap your spirit around this different you. It takes time and effort. It is possible.
Welcome to the forum. It's a good place to be when you are looking for someone who understands your reality because they're living a similar version. Please tell us more about yourself as you feel comfortable. There's lots of information in the Health Pages (see top right of any page) to explain things people commonly wonder about. Ask questions as they form from daily living. Most of us are glad to share our journey and the things we've found helpful along the way.
One question back to you. Are you receiving treatment for the pain and other symptoms you mentioned? A variety of drugs and therapies are available to help make life with MS more bearable. Sometimes it takes a while to find the right drug and dose and combinations for each person. You don't have to accept miserable without fighting for better.
I'll be sending extra special good thoughts your way come Wednesday.
Mary
I made a reasoned decision to use Copaxone when I was diagnosed. I trust this remains the best disease fighting drug for me until my body or the doctor suggest different. I take a lot of drugs and supplements to relieve symptoms and remain functional. Copaxone is the one drug that helps me fight MS progression.
Have your kids ever told you life isn't fair? They are right. Life isn't always fair. Most days we whine about little inequities and move on. Right now, MS has thrown you smack dab into the 3D reality of unfairness. Do whatever is necessary to keep you moving forward in this moment with your daily life and treatment. Much happiness remains ahead in your life. You will catch up to it again once you wrap your spirit around this different you. It takes time and effort. It is possible.
Welcome to the forum. It's a good place to be when you are looking for someone who understands your reality because they're living a similar version. Please tell us more about yourself as you feel comfortable. There's lots of information in the Health Pages (see top right of any page) to explain things people commonly wonder about. Ask questions as they form from daily living. Most of us are glad to share our journey and the things we've found helpful along the way.
One question back to you. Are you receiving treatment for the pain and other symptoms you mentioned? A variety of drugs and therapies are available to help make life with MS more bearable. Sometimes it takes a while to find the right drug and dose and combinations for each person. You don't have to accept miserable without fighting for better.
I'll be sending extra special good thoughts your way come Wednesday.
Mary
I know it's hard. None of us have asked or want this disease. My sypmtoms started in my 20's but it took this long (18+ yrs) to finally get a diagnosis. It looks like we were diagnosed about the same time.
They say it takes about 6-9 months to get the full benefits of the drug so start taking it and keep taking it. Up until 15 yrs ago there were no drugs so we are lucky to be living in a time where there are things that we can take to help us slow this disease.
I have supposedly had MS now for almost 20 yrs and I am disability free. You wouldn't know I had it by looking at me. Yes, there are times when I do feel it but those days are few and far between. It's important to keep thinking positive. It's okay to tell your kids that mommy is sick and they need to help a little more than they are use to. Of course the 3 yr old isn't going to help much but you can make a game of it.
It's okay to move slow. MS kind of puts us into a different reality. Take your time. Don't be afraid to tell people you have it so they can help you and give you some support. Try and do some moderate exercise (like walking) and eat well and try to lay down when you need to. It's important. I mean it, you have to accept the fact that you life has changed. In time you will get use to this new reality. It's kind of like adjusting to parenthood. You can do it.
Write anytime, we will listen.
Julie
They say it takes about 6-9 months to get the full benefits of the drug so start taking it and keep taking it. Up until 15 yrs ago there were no drugs so we are lucky to be living in a time where there are things that we can take to help us slow this disease.
I have supposedly had MS now for almost 20 yrs and I am disability free. You wouldn't know I had it by looking at me. Yes, there are times when I do feel it but those days are few and far between. It's important to keep thinking positive. It's okay to tell your kids that mommy is sick and they need to help a little more than they are use to. Of course the 3 yr old isn't going to help much but you can make a game of it.
It's okay to move slow. MS kind of puts us into a different reality. Take your time. Don't be afraid to tell people you have it so they can help you and give you some support. Try and do some moderate exercise (like walking) and eat well and try to lay down when you need to. It's important. I mean it, you have to accept the fact that you life has changed. In time you will get use to this new reality. It's kind of like adjusting to parenthood. You can do it.
Write anytime, we will listen.
Julie
1 Comments
I love your post thank you for that i was just diagnosed with MS sep 23 2016.so it new to me im only 21 married with 2 kids ..how am i supposed to become one with this ..i have relapsing MS and its days where i dont want to get out of bed.nights where i cant sleep .days where i feel depressed
I have been on Copaxone since Aug 2009. Diagnosed with MS in July 2009.I have had some reactions but all in all my neuro seems to think its doing what its supposed to.
Take Care!!
Kristi
Take Care!!
Kristi
I have been on it for over 2 years............ do you have a specific question about copaxone? We'll be happy to answer. be well, Lulu
I am sorry sounds rough. What do you want to know about Copaxone? Many members are on it or have been.
Alex
Alex
I start my copaxone 3-2-11..I got told I had ms last aug..I also have been having bad headaches..My legs hurt real bad my arms tingle alot and I am just kind of slow now..Its like i am in a real bad dream and i cant wake up..I am 30 yrs old with 2 kids 11 & 3.Its been real hard for them to understand.I was a healthy normal 30 year old and just woke up like this..
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