Just an update

[deborah0904]

In January, my Neuro dx'd me with MS but he didn't put me on DMD's because he felt like I've had MS since I was a child.  Now that I'm 46 yrs old, he feels I wouldn't benefit from the meds.  

Physical Therapy hasn't really helped me.  I'm still very weak and have even begun to develop a problem with my left foot.  It seems to drag and is very easy to stump my toes.  Maybe it's drop foot.  Anyway, I had an appt. for late May to see the Neuro and they called and changed my appt. for June 12.   Due to worsening of cognitive skills and just plain feeling badly, I sent in request for the Dr. to complete short term disability paperwork and I also included a list of what was going on with me.  The Dr.'s office completed the paperwork and in one place, they stated I possibly had MS and in another place, they stated I was disabled and that MS is a debilitating disease.  Yesterday,  the short term disability people called and told me that I couldn't be deemed disabled because I didn't have the dx of MS, I had not been seen since January and the Dr. shouldn't have completed the paperwork without seeing me.  I have been off work since May 28th and go to the Dr. on June 12.  Maybe then the Dr. can clear up all the confusion.  I now wonder if he is going to take back the dx.

I guess I'll just mark this up to another frustrating roadblock.  I can't believe all the problems that come with MS.  Amazing.

[Wobbly]

Hi Deb...you must be so frustrated at this... I know just how you feel... now just breath deep and relax ... I hope it works out quickly and you get the info sent in for the paperwork... let us know

take care
wobbly
undx

[Lulu54]

So what if you've had it since childhood?  There wasn't even any treatment for MS way back then!!! LOL

This neuro needs to go back to school and learn a bit more of the contemporary thoughts of treatment.  

Unless you have SPMS or PPMS you may very well benefit from DMD's and should be on something to slow the progression.  Yes, its not going to cure you or fix what symptoms you have that are already permanent, but it may very well stop the next *surprise*.

I can understand your disability paperwork mess and hope they get it fixed soon.

In the meantime, can you request a second opinion and see a different neuro?  

feel better,
Lulu