Accelerated Cure Project update

[Lulu54]

It's been a while since I have posted this research news so here it is in case you are not familiar with this group:

Accelerated Cure Project is an active repository of data and blood samples from MS patients and their matched controls (siblings, parents, spouses) if possible.  These samples are meticulously collected at sites across the US and then are shared with researchers who are looking to unlock all the MySteries of this disease.

The collection involves people with MS, NO, ADEM and ON - all those demyelinating diseases that seem to chart a common course.  It involves a rather lengthy questionaire about medical history and environmental factors and the collection of blood samples.

There is no charge to participate in this project.  I'm thinking DV flew in to the east coast from Alberta, CA to contribute.  Other than her, who else here is part of this?  I'm in as well as two of my sisters who went as controls.

If you are curious as to what labs  have requested samples and the work they are doing, you can find it all on their website.  This work is taking place all over the world.

acceleratedcure.org

Please consider helping - they currently have over 2600 enrollees but are actively looking for more to expand the data base.

A number of new collection centers have been added and here is the updated list:

Repository Sites' contact information can be found at

http://www.acceleratedcure.org/repository/contact.php


Johns Hopkins School of Medicine
Baltimore, MD

Multiple Sclerosis Clinical Center University of Texas Southwestern Medical Center at Dallas
Dallas, TX


Multiple Sclerosis Research Center of New York
New York, New York



Shepherd Center, Inc.
Atlanta, GA


University of Massachusetts Medical School
Multiple Sclerosis Center
Worchester, MA


Barrow Neurological Institute
Phoenix, AZ


Beth Israel Deaconess Medical Center
Multiple Sclerosis Center
Boston, MA


The Ohio State University Medical Center
Multiple Sclerosis Center
Columbus, OH



The Rocky Mountain MS Center at Anschutz Medical Campus at the University of Colorado Denver
Aurora, CO


Stanford University Hospital & Clinics MS Center
Neuroscience Clinic Boswell Building
Stanford, CA



NO Sites offered at The Guthy-Jackson Repository for Neuromyelitis Optica - I'm not sure if they are also collecting MS samples but you could always contact them and ask.

Department of Neurology UT Southwestern
Dallas, TX

Guthy-Jackson Charitable Foundation
All Greater Good Foundation
San Diego, CA

[Lulu54]

The visit takes about an hour or so.  They will send you the questionaire in advance and you can work through the answers - it took me several hours to do because it involves lots of dates.  

There are a number of tubes of blood they draw, but it all comes from the same stick, so that should not be a problem.

Thanks for doing this - we can contribute in some way or another and this is a great way to help.
hugs, Lulu

[fortywhat2]

Thanks for the info Lulu... I am a patient at Beth Israel Deaconess Medical Center
Multiple Sclerosis Center
Boston, MA

They gave me a form asking if I would be interested in a study at my last visit... I did agree!  I am heading back in there in september and will check out this site before I go to see if they can draw my blood at that visit.