Arm heavyness

[haileyone]

I am having trouble getting a diagnosis after four years. I have 2 non specific brain lesions and evidence of optic neuritis found in a vision study. My neurologist wants to do another lumbar puncture since I haven't had one in nearly 4 years.
My main problems are with my arms - they are heavy, and feel very fatigued. My left lower leg and left side of my face are also stiff.
My arms are so heavy that if I had the same feelings in my legs I would certainly be in a wheelchair.
I'm wondering whether anyone else has more problems with their arms than legs?

[haileyone]

I believe my neuro thinks I may have primary progressive MS, and I know that's difficult to diagnose with only MRI. I don't think she wants to give me that diagnosis unless she is absolutely sure.
This started in my mid 40s and has been a very slowly progressing illness. I have seen other neurologists. I was diagnosed with Parkinson's at one time but that has been ruled out.

[essdipity]

Hi, Hailey. Certainly some people have significant arm problems. Leg issues are much more common, but that's all.

What I think you need is a new neuro, if the current one is still in wait and see mode. And especially if he or she won't diagnose without an LP that indicates MS. A positve LP gives weight to a diagnosis of MS, but is NOT a requirement. Many neuros are forgoing that invasive procedure altogether.

Wishing you well,
ess

[mistylee]

Yes my last relapse affected my arms...particularly the left arm and hand.  I have had symptoms for 4 years as well with more than 8 lesions.  I am currentely awaiting my VEP and ssep results.  This was the first time my arms have been affected though...usually it is more my legs.

As I am left handed it was really worrying to me that I might not regain my strenghth but after 6 months I am pleased to say it has although I still get numbness and weakness in the hand from time to time.

I am dx with possible MS at this stage and have hyperreflexia in my legs.

Mistylee