Is this strange

[rose bush]

I've been feeling sick almost every day for the last two years except for one week in July I felt so good then I went back to the same old sick feelings now for the last week I feel like I have so much energy I can't sit still It's like I won the lotto the only thing I can't do is sleep at all I'm up every hour. Is this something that can happen if you may have MS?  Before I was sick almost all day now very little.
Thank you for your help
Ruth

[Heather3418]

As I said in my previous posts on other threads, I had 7 lesions in my brain and one lesion (large lesion) in my spinal cord that highlighted on my very first MRI.  AND....I still did not receive a diagnosis of MS.  It was three years later, before I finally submitted to a spinal tap, that showed the typical banding for inflammation in the CNS, that I then received my definite diagnosis of MS.  All the puzzle pieces fit.

The words "Possible MS" were a part of my life for three years.  I thought I would go nuts, waiting for a diagnosis of SOMETHING.  My family doubted me when I complained, my friends (who really weren't friends after all) disappeared from my life and my Neuro doubted me.

I am a natural red-head, so I am one stubborn lady by nature.  I would not give up, until someone gave me some answers.  But Rose, it's NEVER too late.  Of course, if you are not being treated with any Interferon drugs or steriods for flair-ups, yes, damage MAY occur, but not necessarily.  So don't be afraid...just be determined.  Don't doubt yourself and don't let others put doubt in your mind.  Keep fighting.

Have you had a spiinal tap yet?  You didn't mention that in your previous post.  MS never sleeps.  It's always active in one way or another.  It's always there.  So if you have a spinal tap and it shows oligoclonal banding, so typical of MS, then I believe you should be treated as if you do indeed have MS and possibly getting a confirmed diagnosis, at that point.

Since you say you have been told that you have possible MS, then maybe you should ask your doctor if he would treat you FOR MS, as a precautionm; until a more definite diagnosis can be obtained.

When our resident expert, Quix, gets her vision problems resolved, you will see her back on this forum, doing what she does so wonderfully...filling in the gaps as a physician, that we non-medical laypeople cannot.  She will see your post and probably be able to advise you much better than I can.  I really trust her judgement on these things.

We are ALL here to support you through this, Rose.  Lean on all of us.  So many of us, have been were you are and totally understand and sympathize.

Heather

[rose bush]

I did go to see an MS Center they just say possible MS and if anything happens before my one year appt again then call them . How long did it take for you? And I'm so sorry that you had a hard time as well. I felt like they want more then inner symptoms and just my MRI test. I'm scared it might need up being to late for me then.
Nice to talk to you take care also

[Heather3418]

I am certainly not a Neuroloigst or have any medical background, but you have some very STRONG evidence of suspect MS.

I believe it's time that you found a neurologist at an MS Center that does nothing but see patients with MS.  Your problems have been going on too long, for you not to have a diagnosis of something.  You must be terribly frustrated.

I would fight until I got answers.  That's what "I" had to do in my case.  I never wanted to have MS, but you know, Rose, it was better than not knowing.  At least now I can take advantage of what is out there, to help control my relapses and remissions.

Please keep us posted and get an appointment with a new doctor.  You deserve answers, Rose.

Take care dear, Heather

[rose bush]

Hi I've had weakness in my right arm always tiered feel flu like smyptoms head aches cold toes not able to sleep not able work I have multiple T-2 hyperintensities scattered throughout the centrum semiovale bilaterally. My spine was ok doc says multiple lobulated foci of increased flair. Some subtle areas of slightly decreased attenuation involving the white matter, most pronounced in the left frontal and right parieto-occiptal lobes. These are most pronounced at the level of the gray-white junction, similar but slightly less pronounced findings are noted involving the right frontal lobe. This has been going on from oct 2005 up to now I have had simptoms some right are tremor doctors still don't have an answear. Thank you God Bless

[Heather3418]

Don't know what happened with my computer and the multiple posts.  I am SO SORRY folks.

Heather

[Heather3418]

Perhaps you could give us some symptoms that you had during that "bad' time, so we could better answer your important question.

Of course, I hope that you do not have MS...whatever you are feeling now, I believe you should see a doctor to let him/her know what was going on and explain everything that you were feeling.  Even the tiniest of details are important.

Best Wishes, Heather

[Heather3418]

Perhaps you could give us some symptoms that you had during that "bad' time, so we could better answer your important question.

Of course, I hope that you do not have MS...whatever you are feeling now, I believe you should see a doctor to let him/her know what was going on and explain everything that you were feeling.  Even the tiniest of details are important.

Best Wishes, Heather

[Heather3418]

Perhaps you could give us some symptoms that you had during that "bad' time, so we could better answer your important question.

Of course, I hope that you do not have MS...whatever you are feeling now, I believe you should see a doctor to let him/her know what was going on and explain everything that you were feeling.  Even the tiniest of details are important.

Best Wishes, Heather

[Heather3418]

Perhaps you could give us some symptoms that you had during that "bad' time, so we could better answer your important question.

Of course, I hope that you do not have MS...whatever you are feeling now, I believe you should see a doctor to let him/her know what was going on and explain everything that you were feeling.  Even the tiniest of details are important.

Best Wishes, Heather