has anyone ever tried tysabri

[kristierocks]

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.
Kristie

[SS1234]

Hi,

I have been taking Tysabri for 14 months and so far so good, not new symptoms or relapses.  I have tried Rebif and Avonex in the past and could never tolerate the drugs (too many side effects).

The side effects I have experienced is a headache and tiredness on the day of the infusion (nothing that tylenol and a nap can't help).  These side effects are NOTHING compared to the flu like symptoms I have experienced on the other meds.

Hope this helps.

[Deb61]

My sister started Tysabri about 2 months ago, and she had some tingling in her foot (the foot that has foot drop).  I've heard really good things about this drug--things like 60% effectiveness rate (compared to the 30% rate of the ABC drugs).  

She's complained, so far, of having a headache on the day of her infusion and then it goes away.  I've not heard any other complaints.  She's wanting me to go on it, but I was just diagnosed and haven't given Copaxone a fair shake.  

Because of the expense of the infusion of the drug (and the drug cost itself), it's a hard medicine to get approved by your insurance company--but don't give up (if you decide to take it).  My sister was denied at first, but was approved a few weeks later.  

Check out You Tube.  Google Tysabri and you'll get a lot of encouraging stories.

Keep us informed of what you decide to do . . . And by the way, welcome to the forum!!!

Deb

[pennst8r]

My sister has been using tysabri for 10 months and is doing extremely well! I can ask her any questions you want.

Penn