Thank you so much for your information, I feel much better about her taking it. It's always scary taking a new medication as everyone is so different and can react in such different ways. I truly appreciate your time.
God bless
Angela,
there are very few side effects with copaxone.
The other injectables can cause liver damage, depression and flu like symptoms.
Copaxone is know to have a very rare side effect of post-injection reaction that can mimic the pain of a heart attack. This lasts for a short bit- occurs immediately after the injection and is done within about 15 minutes. As I said, it is very rare.
Some people also have problems with welts at the injection site or a rash.... if either of those occur make sure she contacts her doctor for assistance. The people at the drug company hot line can only give the standard answers - her doctor and nurses can be more helpfl.
best, L
Thank you for the information, what sort of side effects do you get from this drug if any?..I have heard that after about a half hour of taking the dose that it can trigger severe panic attack symptoms...has anyone experienced this or other side effects that I should know about?
It sounds like the drug your sister is taking is copaxone. It has a very good record of over 18 years in use and is shown to be effective for most of usi n slowing the disease progression, There are a lot of us here on copaxone, including myself.
From what you write, your sister is fortunate that her doctor was willing to start her on copaxone after just one episosde. I hope to see you and/or youre sister around here.
be well, Lulu
Thanks to everyone who has responded, it has helped. I am a CCA nurse and have worked with people with MS. I am mainly on here to learn as much as I can to help my sister and be there for her as I am her best friend.
I hope I do not have MS as it will make things difficult on a regular basis in raising my 4 children. The symptoms I am having can also be attributed to anxiety and migraines(info I got online) and I do have a doctors appointment to find out what is going on.
So far my sister has only had one attack which affected her left leg, she described it as a "dead leg" feeling. She is starting to have some other symptoms like muscle twitches, saying words in the wrong order at times and extreme fatigue.
She will be starting a new medication on the 29th, I forget the name but it is one needle daily which injects synthetic mylin for the MS to attack instead of attacking her pre-existing mylin..does anyone know what this medication is called?..does anyone take this??
Thanks so much to all of you for your time and God bless you all
Hi and welcome. I am so sorry to thear that your sister has been diagnosed with MS, but please keep in mind that this is not a death sentence. Most people with MS live a fairly uncompromised life. I hope your sister falls in to that group.
We are not doctors here, except for Quix, and mainly base our opinions off of our own personal experience. From what you write here, this doesn't sound like MS - it may well be more likely from anxiety.
You talk about the hypersensistivity moving to different locations in your body - MS normally doesn't act that way. I hope you will take your concerns to your doctors and get a thorough evaluation to be sure.
Again, I'm sorry about your sister - please take time to learn as much as you can about MS so you can help her in a variety of ways. I'm sure she could use your support.
be well, Lulu
I have hypersensitive skin too. It comes and goes just like the tingling and burning sensations. I don't think there are medications for it. It is just one of the annoyances of MS.
Today I am experiencing the hypersensitivity on my right labia majora, and it radiates into the crease between my right labia and where my leg connects...I also feel it on my right buttocks. I am having a hard time sitting on hard surfaces such as the toilet. What is happening to me?