Meds are here

[opie74]

My meds are finally here.  The specialty pharmacy finally figured out their job (over 1 1/2 weeks).  Now I hav got to wait on the nurse training.  My assigned nurse lives too far away, so she is going to send another.  No word from her yet.  It would be nice to get on with my life.  I feel as though I am stuck at Dx.  I just want to do this and move forward.  It seems as though all of the professionals are content to drag their feet and take their own precious time.  Do they forget that we are humans too?  Do they forget that we might have a life too?  I mean, come on, hurry up and wait.  I am not in the military.  My time counts too.

I know that I rant alot, it is just that I save the negative feelings for those who understand.

[opie74]

I was happy to finally have it here!  The nurse called today, she is coming Sunday afternoon.  I guess that I can wait that long.  

I guess that the sense of urgency comes from knowing that you are developing more and more plaques every day.  That, and I am just ready to move on with the rest of my life.   I was first Dx mid October and confirmed Dec 22nd.  That makes two months today!

It did come with an auto inject system.  I don't think that I will use it.  I like to go slow and watch the needle go in.  I know that I am strange, but the poping sound startles me.  Even when I was pregnant, I made the use a needle to poke my finger, NEVER the outomatic lancit. LOL

Thanks for listening!
Opie

Thanks for listening!

[Lulu54]

Hi Opie,
You are going to  take which of the CRAB's?  I think I'm remembering you are Rebif.......  whatever it is, did it come with an autoinject system?  If you can read you can probably do it yourself, but maybe you can call their help line and tell them how you are ready to begin now.  

The sense of urgency to start these drugs just isn't there for anyone except us patients.  I felt the clock ticking too once I had a dx and had to wait to start.  It took two weeks from definite DX to my first injection, (with training).  

How did you feel when that box arrived?  There's nothing like a sharp slap of reality to arrive in a cardboard container, I believe most everyone here on DMD's has felt it.  

Stay positive,
Lulu

[Wobbly]

I hope you get someone to help you with this...I'm not yet Dx and have to wait for that still.. so hang in there and hope the nurse gets there soon to help...

I don't know if you should or could do it by yourself...I haven't had that situation yet.

let us know how things go...

take care
wobbly
undx

[opie74]

Thanks for understanding.  Sometimes the Dr.'s office is the worst!

I was thinking.... I have the meds, and I can read.....I could just start the meds now.....

[doni54]

Hi Opie,

You just rant away anytime you feel like it, because believe me, we all do understand!!!

I've been in the ranting and raging mood all week.  It's been like torture trying to get my neuro's office to get my tests scheduled!!  I guess being ill doesn't qualify us for being treated as humans, huh?

I hope you get that nurse training soon and can get started on the meds.  I'm sending you lots of good vibes..............

Take care,
doni