Kel,
JJ is right on about the advice to seek counseling and find a way to get your panic under control. The anxiety is fairly normal at first but you have to remember to breathe. It sounds like you are being consumed and drowning in trying to figure all of this out.
Unfortunately all the answers you are looking for can't be given - this is all a MyStery as to how it's going to end.
This is where learning all you can about the disease comes in to play - knowledge is power. Please turn this energy into learning about MS. Begin by reading all of our health pages for the foundation of your knowledge.
hang in there,
Lulu
Well, the only progressive type of MS that doesn't respond to steroids is PPMS. So, there is one to take off the map.
I don't think even our neuro's know which type until they have had us under their wings for a year. My neuro and I both knew that I sure didn't have RRMS as nothing ever remitted. So, naturally, I assumed that it would be PPMS. We never talked about it since she said a year so....I was shocked when dxed with PRMS. It makes sense today. It is why I never fit in with others and how their bodies were responding. PRMS is the rarest of all forms of MS (only about 4%) but it is treatable. DMD's still can stop relapses.
Anyway, just my personal experience.
I did't mean to be writing it in capital letters, I messed up while typing and pressed caps lock on accident. I apologize for that. I should have gone back and changed it when I saw it. Sorry bout that. Thanks for the knowlage on everything. I learn more and more everyday.
I would love to find my zen though. I don't think I have ever had it. I will look into that.
thanks JJ,
Kel
Kelli, you really are going to have learn how to find your zen, its a long journey ahead, I do think it would be really really helpful to you if you get some counceling (sp) to help teach you how face all the tomorrows. Using caps when you dont usually is making your post come across as you being in a panic and really anxious so if thats not the case i appologise, I do mean the advice respectfully!!!!!!!!!!!!!!!!!!!!!!!!!!
How they or anyone know you have Relapsing Remitting MS and not a progressive type? In the begining its asumed your RRMS until your history of evidence disputes. What your first sx is isn't actually whats important in working out if your RRMS or not, you actually said it your self, you felt 'normal' or in other words your sx remitted, reduce, improved etc. Thats what makes it RRMS and not a progressive type.
Cognitive issues are not fully researched, fatigue is just starting to get noticed as being a very early sx of MS, years prior to dx or lesion evidence of MS. Cognitive changes are something thats getting research interest for TIA's, it use to be the school of thought that a TIA leaves no lasting affect but it seems there is evidence coming out that cognitive changes are there regardless. More research will make this issue better understood.
Cheers...............JJ
Thank you so much! Really appreciate you!!!
It has to do with the location of the lesions and damage. Frontal lobe lesions can effect "executive functions". Motor cortex lesions can effect motion. Visual cortex lesions can mess with vision. Spinal lesions can effect motion or sensation anywhere below the lesion.
It has very little to do with the length of the disease. Most neuros start everyone with RRMS, There are specific criteria for the different type of MS. PPMS generally has symptoms for at least one year with no remittance in the symptoms.
Bob
Okay, so you're worried about having something worse than RRMS. When I was first diagnosed, I had three bad years before I started seeing an actual 'remission.' I had lots of cognitive problems, eye problems, physical difficulties... Not to complain, but I do know what you're going through.
I think many people have the same difficulty. They feel terrible when they're first diagnosed, and after a while things settle down and they can have a new baseline.