Aa
new life new question
Hi. Mega pause, newly disgnosed. Bit overwhelmed. 3 wks on capaxone
Wishing you well as you work through things. Lots of people here I'm sure can help with copaxone questions. Lots of smart, very lovely people. I hope you get to meet them.
Hi and welcome to the forum!
Getting a diagnosis is overwhelming to say the least. I received mine about 7 months ago and started Rebif 5 months ago.
It is a lot to take in and sometimes the changes it brings to your life can be hard to get used to.
This is a great place to connect with others who "get it".
Feel free to vent, ask questions or just pop in to see what's going on.
Take care,
Corrie
Getting a diagnosis is overwhelming to say the least. I received mine about 7 months ago and started Rebif 5 months ago.
It is a lot to take in and sometimes the changes it brings to your life can be hard to get used to.
This is a great place to connect with others who "get it".
Feel free to vent, ask questions or just pop in to see what's going on.
Take care,
Corrie
Hi, I am not new to medhelp, but am new to the MS community. I can relate as the spouse with the overwhelmed feelings, which I know is totally different than being the one who was diagnosed. I myself have Lupus and IC.
My husband was diagnosed with relapsing/remitting MS approx 3 yrs ago, really out of the blue. He was started on Betaseron, been on it since the diagnosis. Thankfully he tolerates it well, as his Neuro said that is half the battle. Prior to the definitive MS diagnosis, for approx 3 wks while hubby was undergoing all the tests, we lived with the "99% sure he has a motor neuron disease, most likely ALS/Lou Gehrig's." So as bad as it may sound, when we went for the results appt, the nurse actually told us it was good news, it's MS. I cried and laughed at the same time thru most of that appt.
One thing we did that helped was buy some books with info on MS. There are some good ones out there..some specifically for newly diagnosed. One called Voices of MS, Stories for Courage, Comfort, and Strength was particularly helpful, just to read about others and their families. My husband and I try and keep a sense of humor about our "issues"...doesn't mean we don't have our down days, I would be whoppering if I said we didn't have some. My mom also lives with us, she is a lung cancer survivor. We all just try to help each other.
There seem to be a lot of great supportive people here, and support is really important in all this.
Take care,
C
My husband was diagnosed with relapsing/remitting MS approx 3 yrs ago, really out of the blue. He was started on Betaseron, been on it since the diagnosis. Thankfully he tolerates it well, as his Neuro said that is half the battle. Prior to the definitive MS diagnosis, for approx 3 wks while hubby was undergoing all the tests, we lived with the "99% sure he has a motor neuron disease, most likely ALS/Lou Gehrig's." So as bad as it may sound, when we went for the results appt, the nurse actually told us it was good news, it's MS. I cried and laughed at the same time thru most of that appt.
One thing we did that helped was buy some books with info on MS. There are some good ones out there..some specifically for newly diagnosed. One called Voices of MS, Stories for Courage, Comfort, and Strength was particularly helpful, just to read about others and their families. My husband and I try and keep a sense of humor about our "issues"...doesn't mean we don't have our down days, I would be whoppering if I said we didn't have some. My mom also lives with us, she is a lung cancer survivor. We all just try to help each other.
There seem to be a lot of great supportive people here, and support is really important in all this.
Take care,
C
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