Please I would like to know others thoughts

[numbkelby]

Ok, first of all I am 24 yrs old male. A couple weeks ago almost 3 now. I went to stand up and couldnt stand up all the way. It felt as if I were to take a step my right hip would come out of my back. As I slowly stood upright there was a pop in my lower right hand of my back and sent a pain down my leg. Well this isnt the first time it has happened..it has happened in the past but the pain would subside after like 5 mins. This time though the pain in my back stayed. So needless to say I went to the doc and he order some physical therapy. So I went to phys therapy. There he said one of my legs was shorter than the other. He called in a pelvis tilt. So he did stretches and after the stretches legs were normal length. Ok well heres the kicker. I went therapy again that week and legs were the same length again. About 2 days later i looked down to look at my dog and my legs went numb. Numb i mean it felt like i was being shocked down the backside of my legs from the butt to the arches of my feet. Well this concerned me after 3 days of the samething..standing or sitting I look down and get the shock feeling i went back to the doc. He ordered an MRI of lower lumbar. MRI came back and my back looked great..nothing wrong. So now I dont know what the next step is..my back still hurts and i look down and go numb and i cant sleep well at night and now its affecting my job. Please help !!:)

[jensequitur]

I've never heard of encephalomalacia, so I had to look it up.  I'm not sure I understand it either, but aren't you a little young for that?  

What strength was the MRI?

[numbkelby]

Hi all! Ive posted a couple times on here..if anyone wants to read all my different symptoms they are listed on those posts:o) I havent recieved a call from my neurologist yet..but I went and got a copy of my MRI report that I had on Friday. If someone can help me interept this more that would be great :

MRI BRAIN WITHOUT AND WITH CONTRAST:

Findings:

There is encephalomalacia and gliosis of the inferior left frontal lobe measuring approximatley 18x10x7 mm in size. There may be a smaill amount of associated susceptibility. There are approximately 3-5 punctate hyperintensities thin the left greater than right frontal lobes. Small bilateral perivascular spaces are demonstrated.

The rest of MRI appears normal so I am not going to write that part. I tried to look up different terms and all but it doesnt really help me understand it more. If someone has some insite on this or has had a smiliar MRI I would love to hear about it. I am just worried. Thanks all!!

Kelby

[numbkelby]

Hey all..I called my neurologist shortly after my last post to be put on a cancelation list. Well it worked I went and saw him yesterday. Also during that time I had an MRI of my c-spine..it showed some deteration diesease, spondylosis, kenosis..Well neurologist puts it into a lump some and is calling it cervical myelopthy? Whatever that is but he said my c-spine MRI doesnt show any pinches of nerves or any pressure on the nerve itself..so he said he didnt have an answer for me just yet..he said it could be inflammation inside somewhere within the spine itself or inflammation of the brain. Tomorrow I am having an MRI w/ MS protocol w/ contrast. Has anyone else had this before? anyone have any thoughts of the findings> Just curious! Thanks:)

[Nancy T]

If it's the word I think it is, there is general agreement that it's been "sanitized" by widespread use and is now OK to say publicly, but I presume that this board is extra cautious and is set to automatically "star out" words if there's the slightest chance they will be thought offensive.

In any case, one can almost always figure out which word the person meant! Meaning is very rarely lost.

Good luck with your further evaluations!

Nancy

[numbkelby]

Why would that star out?

[numbkelby]

Thanks everyone for the advice. Spoke with my doc and he is giving me an MRI of my c-spine tomorrow and referring me to a neurologist. ***** that i wont be able to get in till July though...

[sllowe]

Hi there,

Welcome to the MS forum.  

That is a wretched sensation isn't it? I've had it as a buzz by my tailbone, to numb or tingly legs, you name it.  Mine is due to a large lesion in my c-spine. Best thing to do is to avoid looking down - or chin to chest. I mean, try not to trigger it because it simply, doesn't feel good!

I don't know the cause of yours.  It could be Lermittes, but it's best to describe it and have a Dr. make the decision.  

Hope it subsides for you. Stick with that PT for the other issue.

See you around!

[numbkelby]

Thanks Nancy! I'm just frustrated with all docs right now. I feel as if i dont get anywhere or any better visiting them. I love everyones input because then I know that there are other people out there with the same thing happening to them.

[Nancy T]

P.S. While they're MRI'ing your neck, they might as well do your brain, because if there's a suspicion of MS (which there ought to be if you have Lhermitte's), they will need an MRI of your brain anyway.

[Nancy T]

The symptom you describe that you get when looking down is called Lhermitte's.

You need to have an MRI of your NECK, because that is where the problem lies in Lhermitte's.

Don't bother with the doc who ordered an MRI of your lower back in response to that symptom. Go see a NEUROLOGIST. Although it usually takes several weeks to get in to see one.

Lhermitte's can have numerous causes. Spinal problems and MS among them. A neurologist needs to sort it out.

If any doctor by chance tries to tell you that Lhermitte's has to be a shock down the spine, don't listen. What you have is Lhermitte's.

Good luck,

Nancy T.