optic neuritis question

[mikeysmom1995]

Hello everbody!
I went to my opthamologist for a long overdo eye appointment who proceeded to tell me that I did not have optic neuritis. Needless to say I was a bit shocked as this was part of my dx.How I was diagnosed was I woke up one day with double vision, eye pain, and my whole right side was numb and I had tingling in the right side of my face.

Went to GP and after office exam she immediately sent me for brain MRI. The MRI showed  old and new enhancing lesions both in my brain and enhancing lesions on both right and left optic nerve. The radiologist said they were demyelinating lesions consistent with MS.

Then referred to neurologist who did exam and ordered cervical spine MRI which also showed a lesion. Back to neurologist after 3 day course of solumedrol who confirmed my MS diagnosis.
THE neurologist asked if I had ever experienced any of these symptoms of numbness or tingling or eye issues. When I was 18 I had my first symptoms of whole right side numbness and tingling. My GP thought I could of had a stroke so I went for a brain scan where they injected dye and watch it go thru my brain. The test came back negative for stroke and said I was showing signs of exhaustion due to my college and work schedule (fatigue). I slept for days after that and my symptoms resolved.
Fast forward MANY years and odd symptoms here and there. BAck issues, Right foot numbness, bowel issues,bladder issues,heat intolerance.
Prior to my dx I had been doctoring with my opthamologist be cause I would wake up and one of my eyes would be red on the outside. Not itchy or draining just sore and lots of pressure. He never did figure it out but the only thing that would help it was steroid eye drops.
So my opthamologist is saying my neurologist was wrong to make an optic neuritis dx as my symptoms were not consistent with the dx.  I told him I met the criteria for MS dx and he said that he doesn't even know what that is but he was sure I didn't have optic neuritis.
What do you guys think? I'm not even sure what to do now!!!!!!
Thanks for reading my long post.
Best Regards, barb

[mikeysmom1995]

Thanks barb for your reply.
I am totally confused by the eye docs comments. He dilated my eyes and said everything looked fine. I told him that the neurologist said he should be able to see where the lesions were when he dilated my eyes and he said well I don't see anything so your eyes are fine.
I also told him that I continue to have issues with my eyes and he said they were probably just dry and to use moisture drops.
He wants me to have a visual fields test next week for a baseline.
Sorry, I'm ranting again.
Regards, barb

[bbassel]

Wow talk about confusion! The optic nerve is fairly easy to see. It is my understanding that when you have had optical neuritis that optic nerve becomes pale and neurologists and ophthalmologists can both see this during an exam.

I don't understand why there is conflicting information from both specialiists.

Just thought I would put my two cents in ;)

All the best,
Barb