pain

[mandymary]

hi there
this is my first post on here and my question is about night pain.

i suffer quite badly with pain when just dropping off to sleep.

a couple of years ago it started as electric shocks in my head but two years down the line it now goes all through my body.

sometimes its like having an electric shock in my neck or my chest, other times it goes from my head to my toes.

it was very scary at first but am getting used to it.

have previously been under a neuro who said it was panic attacks which just doesnt seem right.
how can you have a panic attack when you're that relaxed that you're dropping off to sleep?

i would like to know if this is a common ms symptom please.

best wishes to you all

mandy xx

[Sparkysarah]

I have been fortunate and not experienced anything like this personally so do not feel I can add anything of any significance. However I would just like to join the others in wlcoming you to the forum. When I first joined I felt so welcomed by people who did not even know me as a person and I had no idea just what an amazing site this is. So I just want to say sorry that you are still in limboland, but from a positive perspective..there is still hope that it may be something else and not MS. Hang on to this..it is hard dealing with the unknown when you are suffering and in pain. Are you on any meds to help..if not it may be worth speaking to your dr/neuro.

Take care and welcome

Love Sarah x

[MomofTwo83]

I definitely know what you are going through at night.  I have this thing that first started off in my legs, kind of like RLS, but now it goes to my entire body.  My chest, stomach arms and legs are affected when I am sitting still, relaxing on the couch or trying to go to sleep in my bed at night.  I have only a clinical diagnosis and we are waiting for my neurologist to give me a full diagnosis of MS.  I definitely know what you are going through, but I don't think it's L'Hermittes, because I get that when I put my neck down, tilt my head or look down and I can definitely tell the difference between that and what I get at night.  At night it more of an achy, burny or like my body is covered with bugs and they are biting me all over (creepy to think about).  And the L'Hermittes is an electrical shock that goes from the back of my neck down my spine to my left leg, so much so that I have to kick out my left leg cause of the pain.

I haven't come across any relief from this body ache yet, but once I was perscribed a muscle relaxer which seemed to help somewhat in a higher dose to where I was able to deal with the pain enough to sleep.  I was perscribed Somas I think they were called.  But I was only perscribed 30 and that was a long time ago, now I am on nothing for any of the symptoms until my neuro decides to give me something.

I hope you find some relief soon.  Let me know if you find anything that helps.  OH, I almost forgot, I use to get those Icy Hot patches and would put them on my legs and arms at night. It wasn't that they took the sensation away, but gave me a different sensation to the point where I could almost ignore the other one and go to sleep.  It's worth a try I think, since you can get those in off brand which is cheaper.

Victoria Douglas

[mandymary]

hi
neuro was sure it was ms but then only one lesion showed on brain with two abnormalities on spine, sort of like indents on the spinal mri.

just getting by day by day and kind of getting used to living with the fatigue etc.

i know that there are lots of people in this situation so that helps just knowing im not going mad and imagining things :)

[figuerpa]

Hi and welcome to the forum. I am with Lulu on this one. I can not lower my chin to my chest. I can't even move my head down a little without the L'Hermittes elcetric shock feeling.

I do not get it when I am just lying down. I do get sharp stabbing pains at times. My biggest issue is with pain but it is more of a burning pain at night that is hard to deal with.

I get the sharp stabbing pains as well as the dull aching pains. It is hard to deal with but for the most part you get use to it.

Have you been diagnosed with MS or are you still in limbo land?

Take Care,
Paula

[Lulu54]

the majority of people with l'hermittes can't do that without tremendous discomfort.

Sorry but i don't know if you are dx'd or not with MS.  

[mandymary]

hi
thanks for replying,
no i dont get them when flexing only when lying down.

i can touch my chin to my chest with no effect.

thanks again
mandy

[Lulu54]

Hi Mandy,

L'hermittes is the name for the electric shocks that some people with MS feel.  Is it common?  We don't all experience it but it certainly isn't rare, either.  I don't know that I could even guess what percentage of people have this problem.

I find it interesting that you only feel this while in a prone position.  If you are upright and flex your neck, do you feel the shocks then?

Lulu