So much more, i have shortness of breath mostly all the time, When i am ative or just "moving" and when i am lying down at night. It only got worse and i couldnt sleep because i couldnt breate..very scary. The dr said to take it easy and put me on predisone and levaquin, he is concerned with pneumonia,
anyway, twice it got me in to my cardiologist, he is the one who wanted me to see a neuro, who rejected due to my age.
I jusr had a whole new set cardo test and my heart is perfect..this time my primary saw it in my MRI. I dont know why i am writing this but all these terms take me somewhere, not sure where though.
meg
Quix - Heck, no, I'm not offended. I've had 4 years of dealing with mental blanks and I'd have gone pure nutso by now if I'd not learned to laugh at myself.
Hang in there and make sure you get the tests done - I'd say the holter monitor at least, as irritating as lugging that thing around for a day is.
I have to admit they are a little concerning... I've gone to my PCP about the shortness of breath, and I'll be going back in a couple of weeks for a follow-up. It's been a while since my lungs have 'slammed together,' but I still get breathless regularly... especially today. I'm really curious as to whether my heart rate is actually uneven, or I'm just getting short of breath for no reason.
For a while I was convinced that I had something in the pons, but I got smart and looked at the films with contrast, and nuthin's there. So I think it's probably the diaphragm - I've had other symptoms which indicate a problem in that area. But I'll still go to the PCP - that's what she's there for, right?
FIRST - to Buried in Fur - I want to apologize to you in case it felt to you like I was mocking your misprint. I forgot that you were new to this forum and might not understand how much we "enjoy" all of the typos, misspellings, and wrong words we all come up with caused by our cognitive fog. It helps us to understand that we all have blurps and problems with language. For us cat lovers I like to think of these times as "mental hairballs." Please forgive if my repeating yours had any sting for you. I would never intend that.
Amas - Steroids have two reliable effects on the cardiovascular system. the first is the retention of salt and water that can cause steroids to go sky high and do it quickly. That may be the cause of your BP monitor going off. We also may noticed a gittime jump in weight or swelling of our feet or feeling like our fingers are sausages. The second is they cause wasting of potassium. So, if you are having increased palpitations or muscle cramping on the steroids you might want to ask your doc about supplementing with potassium, or at least checking it. It may depend on whether you are also on diuretics (which also waste potassium) or on a "potassium-sparing med, like spironolactone or triamterene or others).
Kathy - No, a few PACs or PVCs is not going to throw clots. The worry is if the heart is frequently in an abnormal rhythm, then the chambers of the heart may not fill and empty correctly. If blood pools within a chamber of the heart it may form clots which then can be "thrown" to the brain and cause mini strokes and brain lesions. That is the connection between arrhythmias and clots.
Sometimes a Holter monitor rcords continuously, sometimes it monitors and records anything that is not a normal sinus rhythmn and sometimes you have to trigger it when you "feel" the palpitations. The last two would be considered event monitoring.
Palpitations are very common and mostly benign. A palpitation is when "you can actually feel your heart beat or, more typically, feel that it is beating irregularly." The young healthy heart can have occasional PVCs. Caffeine, meds, stimulants and anxiety can cause or increase them. I think all should be checked out once because scattered among the normals will be the people whose palpitations signal something wrong.
With your history of serious arrhythmia and ablation, I would put this question to your cardiologist, first.
Jen - you do describe episodes which sound concerning. Have you had an evaluation for them? I would recommend it if you haven't. And, when MS affects the autonomic nervous system, it certainly can affect not only the blood pressure, but the rhythm of the heart. In my reading this would be the minority of PVC's. Then also there is the frequency of extra beats caused by the electrolyte changes on steroids.
Again - as made obvious by my incorrect description of bigeminy, it is obvous that I am not a cardiologist. I think Lulu and Kathy problably know more about cardiology than I.
Quix
I think it's more likely that the brain lesions have caused the PVCs!
I have frequent shortness of breath, and what feels like an irregular heartbeat. My lungs seem to slam together and the bottom drops out of my diaphragm, making me feel short of breath and a little odd! I take a deep breath and things start back up again.
I don't think I have a lesion in the pons, although it's possible that I've had some neurons severed in that area. One possibility is that I'm losing muscle control of my diaphragm, which helps with air movement.
I had PSVT, and had an EP study and cardiac ablation in 2003. Since then, my episodes of tachycardia have greatly improved.
I continued to have a few weird beats, flutters, and such, and my PCP hooked my up with an Event Monitor (I guess that's the same as a Holter monitor?). It showed "occasional PVCs" "occasional PACs", "mild sinus arrythmia" (had to laugh when I read above that it's normal with breathing in and out), and several events of mild sinus tachycardia.
Though uncomfortable at times, I knew that my symptoms were mild enough to be of no concern, as my PCP and 2nd neurologist assured me.
The funny thing is, my 3rd neuro was concerned that my irregular heartbeats might be throwing small blood clots, thus explaining my many small brain lesions. I was pretty amazed at that leap, and when I mentioned it to my PCP, she assured me that that was not a concern. I had given a copy of the printout from me Event Monitor to neuro #3.
I guess that just goes to show that a specialist in one field does not a specialist in all fields make!
What's your opinion, Quix, if you read this? Can a few PACs or PVCs cause brain lesions? I know you're not ready for your Cardiac Board Exam yet, but I'd still like your opinion.
BTW, I gave up caffeine, drink lots and lots of water, my electrolyte levels are always good, and all that jazz.
It seems a lot of us have palpitations. I'm not diagnosed, but have neurological issues. Should I ask my neurologist about the possible neurological basis for the palpitations? I love encouraging her to think outside the box. ;o)
Kathy
I've had episodes in the past with constant palpitations. Just laying down reading they would come on. I was always told "It's nothing."
Quix thanks for giving all this extra information. I'm on my 9th day of steroids. I'm dealing with palpitations these last few days and yesterday woke up with a heartbeat feeling in my throat. I do have high BP usually quite controlled with my meds. Not as good right now but not that bad. However, before getting out of bed this morning I took my BP and it was 138/88. Last night my BP monitor beeped and irregular heartbeat signal to me 3 different times and one time today. My dull headache doesn't go away and my feet are ice cold and I'm dizzy. I thought it had to be the Steroids. I'm calling my Neuro tomorrow so I can wean off of them correctly.
I read an old post last night on steroids and keeping an eye on the BP if there is a history of this. I felt the palpitations had to be related somehow to the steroids. I just don't "feel right".
Buried in Fur is correct - The bigeminy rate is "normal - PVC - normal - PVC - normal - PVC." I was completely wrong. I guess I am not ready to take my Cardiology Board Exam yet.
darn
I have used a couple of ways to document weird rhythms when there isn't a heart monitor around.
If any of you or your friends have one of the audible exercise heart monitors then you can wear it and hear the specific rhythm - for PVCs it is quite distinct. Then you can record the rhythm and email the audio file to the doctor or just play it for them when you are next seen.
Also some BP monitors will play your heart beat audibly. You can also record this and do the same. It is "proof" that your heart is outawhack for those doctors that thinks all women have palpitations.
Now, this doesn't give the EKG "waveform" that allows them to diagnose what kind of abnormal rhythm it is, but it is definite evidence that a heart rhythm is not normal.
A note for everyone who listens to heart rates. There is normal phenomenon called "sinus arrhythmia." And for the person who doesn't know about it, it may be concerning. In normal people, especially younger ones and young adults, the heart speeds up slightly as you inhale. Then it slows as you exhale. In some people this can be fairly marked and may make you think you have an irregular hear rate. If it seems to beat at different speeds (this is different from palpitations) then notice if the change is related to your breathing.
Recording the heart rhythm is another way of collecting solid evidence that something is different, when you can depend on it happening at the doctor's office - just like getting a video of nystagmus, or abnormal movements, or a gait.
Quix - Next time I'm bored I'm going to try bigamy. It would certainly help with the problem of social isolation! ;))
Quixotic1....LMAO! Oh my, I didn't notice that. Lovely lovely hole filled brain of mine. But it gave me a good laugh too.
Good for you Mary Kay - keep it up. It's hard to keep going back when you already have so many dang things (I know I feel like a whiner) but it's important.
Thank you so much for all the responses! I never expected that. I have normal BP, had 2 treadmill tests (one with dye), worn a holter monitor...I was also told to basically ignore it. I can feel my heart beating every time I lay quietly. I can also feel the "skipping" or whatever you can say to describe the palpitations. They were described as PVCs. I remember to drink water most days, but I think I will try to increase my potassium. Finally, I'll tell the doc next time I see her. I am seeing my PCP on Monday, so I'll remind her too. A lot has happened since I saw her last.
Thanks everyone,
Mary Kay
I have had heart palpitations for the last few months. I am also pregnant so all was blamed on the pregnancy, even though they never occured before with my three other pregnancies. They just started since all the MS symptoms started. I thought it was probably just another new thing my body wants to bug me with MS or whatever I have.
hi there!
this is making me think about getting another cardiologist. Right now I want to just scream at any dr. Please don't ask why... I just had a bad week mentally and yeah, BUT... my heart is screwy and my cardio's advice about 2 years ago was to breathe deep and ignore it, and it will go away. He never did a Holter monitor, etc. although I will give it to him for scanning my heart and finding the 'slighty funny heart valve' although it wasn't bad enough to be considered mitral valve or anything like that.
So, I should proably see someone who will at least take a look at my high BP and funky heart rythms again and redo my meds as they aren't working. (cartia xt)
Am I to beleive that deep breathing won't solve those two?
~Sunnytoday~
I love your pic! It is one of my favorite!
I also am impressed at your levels of PVCs. That's a lot. When someone is in "bigeminy" it means that two extra contractions are occurring back-to-back. I have had both bigeminy and trigeminy. They are indeed uncomfortable. I had to laugh (gently) at your having episodes of bigamy. That sounds like much more fun. Thank you!
To all - I think the issue of palpitations (which is the word for when you actually feel your heart beating, or lurching, or fluttering, or turning over) may have a place with MS. All that I read above from Lulu and Deb is true. Heart irregularities are 1) not to be taken lightly and should NEVER, EVER be scoffed at by any medical personel. Shame on them! and 2) not felt to be common in MS, but (again from my reading) I do think that more people with MS have autonomic problems than is really recognized.
Mary Kay - make an issue of this to the neurologist. Get it all checked out.
Now, other reasons for palpitations, including PVCs :
Taking stimulants such as coffee or meds for ADD or Provigil,
Steroid treatment and subsequent electrolyte problems. The most common one is low potassium. Check to see what you potasssium has been running. If it is low or low-normal, then increase the postassium rich food in your diet or take a couple of OTC potassium supplements a day. This reallly helps my palpitations. If you are on diuretics - potassium can be a huge problem and you should make changes (in you potassium intake) only after talking to your doctor.
Dehydration - I bring this up because I have recently realized that I am keeping myself dehydrated to avoid the frequent bladder accidents I have been having. So I have just almost stopped drinkg water - Don't worry, I am back to solving this, but it is a natural reaction to trying to avoid accidents.
Spasms (of the coronary arteries) would feel more like heart/chest pain or like a heart attack. Palpitations indicate that you can feel your heart beating and it feels like the beating is abnormal (extra heart beats or beating too fast).
Okay, just a jumble of thoughts....Carry on.
Quix
I'm 33 and this feb had a really odd bad crop of them - I've had them all my life but didn't think anything of it. Then I started having them every minute...and then 10 a minute...and then it went crazy. I went to the ER and got chewed out cause I didn't go in sooner.
Turned out that they were just harmless PVC's (premature ventricular contractions) but they were happening so much they made everyone at the ER stop and look at the monitor like 'whoa'. I was having episodes of bigamy which is when you have a normal heartbeat, a pvc then a normal heartbeat, pvc...onward. So, not much fun.
While they ruled out anything bad, they said that it was cruital to go in. Women present differently.
I'm still in limbo for the ms. Joys. LOL
Yes, please do send the web site. Thank you! Deb
Deb,
the attitude of emergency personnel who make women feel like they are wasting the time and resources may be responsible for so many deaths that could be avoided. They make us feel like it is a waste - when in fact something is wrong and they should be doing their job and trying to find out what it is....
This attitude may be a big factor in why 2 out of 3 women who have heart attacks don't survive the first one!!!
It makes me feel good to know you will rethink this - if you want the evidence I can send you to a site that will make your toes curl - full of young women and old women- you can print their stories and take them with you!!! :-)
Be well,
Lulu
I've never thought of those "heart flutters" as spasms. That is something to look at when this happens again. That's exactly what it feels like, though. So this can set off heart attacks? I do have high blood pressure, but it's under good control.
I've gone to the ER for this only to be sent away with a referral to a psychiatrist (pre MS diagnosis). The ER doctor also made me feel like I was a hypochondriac that got in the way of people who really needed help.
Thanks, Lulu. I will handle such events differently if this starts occurring again.
Deb
MaryKay,
Are we talking palpitations or spasms? I ask because I had a heart attack in January due to spasm - rare but it does happen. No high blood pressure, no blockages, just a spasm that triggered the cardiac event. I am being treated by the cardio for angina but I suspect it is related to the MS instead.
The problem with the medical comunity is finding a doctor that is williing to look at one of our systems interferring with another. The cardio vascular system normally doesn't interact with the CNS, but it can. I have since found journal article linking cervical lesions and vasospasms and heart attacks. My cardio is interested in this idea but my neuro just chuckles at me and thinks I am in denial about having a MI. I definitely had a cardiac event, but the burning question to me is still what caused it?
Please do no take chances with palpitations or spasms. If they last, make sure you get emergency treatment. Don't worry about being embarrassed - that's a better alternative than having something cardiac go wrong.
Be well, Lulu
Thanks, Deb. No, I am not taking anything. Seems like it is always there, but some days are worse than others. If it could be related to my other problems (dx not official yet) then I better tell my neuro about it after all.I too had my heart checked out with stress tests, etc. but nothing ever was wrong with my heart, so it was chalked up to "stress" I also never told her that I used to suffer from cluster headaches. I had those on and off from 20 - about 55 y/o. I guess since menopause, they have gone away. I used to take ergotominel/caffeine (Caffergot) suppositories for that. If I caught it in time, it worked very well.
I have had them--but have almost gone. I do think it's related to MS. My sister has them, too, and saw a cardiologist before her MS diagnosis. She was diagnosed with an autonomic nervous system problem. Her neuro explained that this could be related to MS or could be a separate issue. She has numerous, tiny lesions on her brainstem.
Like I stated, I've been to two separate cardiologists years before my MS diagnosis about it and have found nothing wrong with my heart. I didn't have the tilt table test like my sister had to explore autonomic nervous system problems. I think that my problem is like my sister's.
This year, I've noticed that I'm not aware of them or that the problem has almost gone away. I will sometimes notice them when I have overdone something or am hot or stressed out. I thought this problem was permament before, but I'm thinking that the situation may in fact go away.
Are you taking anything for it? Maybe a beta blocker would help you.
Deb