results of test not sure what to think now

[Chreey]

Hello all I recently posted on here. i have been having nerve spasms that can be seen under the skin and involuntary muscle movements. Also migrains and dizziness and some loss of memory issues. And my legs have been feeling very weak and burning and sometimes wanting to colapse from under me. My neuro did a ct and invoked potential testing. Why he did a ct instead of mri Im not sure. But those tests came back ok. He also did a emg and that came back ok. He just ran a full blood panel on me yesterday. I still yet to have my eeg on the 16 which he has switched from a 24hr to a 48 hour and also now he is going to do an emg on my legs. So he said we have ruled out ms. I just don't know what to think it could be now. Starting to think that im going insane here all the tests are coming back normal. My last eeg two years ago was abornomal. If this one comes back ok im going to be really confused. Any thoughts on what could be going on? And is it possible to have an abnormal eeg and everything be ok? And is it possible to have one abnormal one and then one be normal? Any help would be great. The dr told me to be patient he wanted to be thourough and not miss anything but im no closer to awnsers now than i was how many tests ago and how much money ago. If i don't get any anwsers soon i may switch drs. I waited for ever to get in the room and then once i got in there i had to wait forever and then he had to walk out of the room to awnser his cell. And then started talking about giving me an injection cause my backs been bothering me and then switched subject to the blood panel and forgot to give me the injection. So frustrating.

[MissLauraI]

Ah cheesymum I am so sorry that you are still left hanging. I too would ask why not an MRI? That seems to be the one constant test--to a fault it seems- that most neuros rely on. I know how bad you want answers. Your neuro sounded very distracted. Whatever happens get a second opinion for sure and hang in there. There will be a conclusion for all of us limbolanders. Hugs to you.

[jensequitur]

In my opinion, a CT scan will not rule out MS as a diagnosis.  I would question him very thoroughly on why he thinks MS is not an option.

A normal workup for an MS diagnosis includes:

1.5T MRI with and without gadolinium contrast
Spinal tap/lumbar puncture to check your cerebral spinal fluid for oligoclonal bands

If the results aren't conclusive, then they may send you to get a VEP and EMG.

[figuerpa]

I know it is frustrating, but hang in there. MS is a very difficult disease to diagnose. It can take many years to get a diagnosis. Your doctor was right when he said to be patient and it is awesome that he is being thourough, many doctors are not.

Hopefully your eeg will start you in the right direction.

Patience is not something that comes easy for me but I have learned through this journey that I either have patience or go insane. Take it one day at a time and you will get through it.

Keep us posted on your eeg results and blood panels. Call him back about the injection maybe he can squeeze you in to do it for you.

Take Care,
Paula