A bit of an update

[twist330]

Sorry I've been lacking the concentration to post anything on the board lately. But I felt the need to update you on what has been happening.

Firstly I went to see my GP about the problems I have had just before my period, I get a slight  fever and that set of all the neurological problems I have convenietly forgotten to meantion it at my consultants appointments but it was so bad I ended up at the GP's. He checked my Thyriod and hormones with blood tests and all was normal. So he suggested that maybe trying prozac might help! This was not what I expected, he was not willing to give me depo injection as it may cause osteoporosis. So 20mg of Prozac added in the mornings.

I then had an appointment with the neuro rehab team. Who decided that I have weakness in my right foot and toes and I have an appointment to see an orthrotist to see if some kind of shoe insert may help because at present my toes curl under.

Then came the appointment with my General Medical Consultant. He is a great Doctor and stepped in when my Neuro had done his tests couldn't make a Dx and didn't know what to do. He has arranged my medication. Well on this occasion I'm sat in the waiting room list in hand (as I keep forgetting to meantion things) and I get called in by his registar. I was not prepare and when he asked how things where going I just burst into tears! Good job I had the list. He was very pleasant and came across as very caring, we went through the list together.

Cramp -  the quinne prescribed had done nothing. I explained I been to the GP and he had given me prozac. Also the neuro rehab team & orthrotic's. Then I went on to explain that I was having a bladder problem infact just 2 nights earlier I woken up completley wet, and during the day I seem to drip. He asked loads of questions and need to speak to my GM consultant. He came back in the room and said he (& GM consultant ) wanted me to see a Urogynocologist (which I sort of expected). He then said they wanted to refer me back to see a neuroloigt.

At this point I found myself getting upset and saying I couldn't see the point as he had written me off! He explain he would refer me to someone different that would think outside the Box! So I agreed.
He felt that he would prescribe anything for the cramp at the moment to see if the orthrotic's improved things. And he has asked my GP to ween me of the duloxitine as I was getting a very dry mouth which was causing ulcers.

Now I find myself very nervous about the future appointments. I know this was a good result really, but I am stressing over seeing more specailists. Also coming off a drug when the pain is worse.

Sorry it's a long one

Twist

[twist330]

Thank you.

I have seen a neuro psychologist and she feel my symptoms are not caused by depression in any way and she has informed my dr's of this. But they all feel lack of a Dx or any kind of resolve to the symptoms are causing me stress.

I just feel concerned about going back to a neuro, who will work in the same hospital as the old one.
I have no idea what to expect from a urogynocologist!
Twist

[Sidesteps]

Twist, are you in limboland? I don't know much of your history, I apologize.

I will say that a good specialist can make a HUGE difference in your outlook. I also think taking a anti-anxiety/depressant can help clear your thougths a bit so don't think immediately that depression is causing your symptoms. It just helps you cope, especially prozac.

My mom has had some bouts with significant pain at times. They thought Fibro but it turns out is is likely an auto-immune disease but aren't sure what. It's a wait and see with her as well. Anyhooo - they put her on prozac for awhile and it really helped her cope with the pain and anxiety from the pain so much so that when she opted to try going off it, she went back on. It helped her sleep better.

There are some real benefits to those medications at times. You might be surprised that you won't need a hire dose pain medication or can use OTC medications mostly.

Hang in there. I am sorry you are struggling but it does sound like you have a good team of doctor's working with you. (hugs)