Numbness rightsided

[Lol20]

Hi
been following site want to say hello to All !

I have had bad bout of right sided numbness including my tip of tongue lips face all head down to foot! Very bad  lasting 5 weeks now and my left side in last week has been joining in for fun but indifferent way more pins needles less dense n heavy and different way ,  I am shocked it has affected all of me because usually it has just been mainly my left side for years when in relapse odd ride side e.g right hand went numb years ago for months but now this whole body experience is new and my speech has been affected.   ........... Ha ha ha       I just feel you just never know what is going to get thrown at you ........... I just wanted to reach out to others and see what they feel like especially now having numbness so bad in tongue lips and swallowing been affected temporally all a it scary but speech and swallowing ok now but hate anything with my mouth and find all this numbness all very disabling and a real mind game"........ Keep trying to keep myself busy mind of it but it's been so debilitating but just had great christmas despite it all because of supportive family and friends , how do u all cope? Xxxxxxxx

[Lol20]

Hi thankyou  for your reply, it means a lot you took time to write and good to low someone else out there going through same thing"..."......when feeling better will tell you more about myself ,sending kindest regards x

[karryon55]

Hi there & welcome to the MS Community.

I was unsure from what you've said what your diagnosis is? I guess the question should be have you been dx with MS and how long have you had it?

If you've been diagnosed and you are feeling sensations on a side of the body you normally wouldn't and is so widespread...I would be contacting your Neuro asap to keep them in the loop. You may need some IVSM to get you through or maybe not but it's important to at least let them know of your changes.

In regards to how I cope. I sometimes do and I sometimes don't. I find that when I have a new symptom that is quite disabling I do struggle for a while to try and learn how to manage day to day living. I had a relapse in August which produced some speech difficulties & some problems with my leg. These both took the wind out of my sails because at first I could barely speak and was barely able to get my leg to move. It's all still with me but now 50 to 75% better unless I get too hot or tired.

I tend to try & make light of some things like my insane speech at times because it sort of eases the tension of those around me. I am trying to not worry about what I have going on & if I'm going to remain like this forever because it's not helpful to me. I now try to pick myself up and start working in physical therapy, speech therapy, OT etc to improve as much as I can.

I'm sure others will chime in here with their experience. I have RRMS which kind do you have?

Take Care,

Karry.