trying to find answers

[nikki861]

Where do I start?! Well, just got off the phone with my Neuro. I am not dx with MS at this time. I have been suffering systems since 2001. Had an MRI done then and was told it was good. I have been home from work for the last 6 weeks because of severe migraines (which i do suffer from) have had one a week for six weeks. Family phy. gave up and said you need a neuro. Because i had severe pain behind my left ear (and i do mean SEVERE) i decided to see my ENT. While at his office, i was in terrible pain. He ran the light thru my nose and looked at my sinus and my ear. Said it was not coming from that. It was a referred pain and i should see a neuro. He actully made the appt for me and also ordered an MRI to be done before i saw the neuro so that he could read on the first appt.
Saw the neuro and he did exam. Read the MRI. White spots showed, but was told those were nothing. Did not see anything that would point to MS. I have been told that i have systems related to MS. Today I spoke to him and asked him if there is anything else we can do because I am going NUTS. I woke myself up last night crying because of the pain in my legs. So, tomorrow morning I am haveing bloodwork done to rule out a number of other things. Then if that is all good he will order a LP.
My oldest daugther died in 1992. She was 6 years old. She died in an accident. Why is it taht when a doctor finds this out, immediatly I get labeled with depression. No, the hurt never goes away, but I dont dwell on it!! I trust God and I try to live life!
Thanks for listenig to me............sorry if i rambled.
Hoping to get answers to my problems soon.
Neuro did say .........trying to dx MS is like building a brick wall.
Hopefully he will stick with me and find out what is going on.

[nikki861]

Thanks hummingbird, yes I do have other children. She was my oldest. She would be 22 in April. My middle dau. making 20 in April. My baby girl just made 16 in Jan.
It just made me mad when he said depression, because I always find drs. want to put things off on that when they learn about my loss. It has been 16 years. Yes, it is the most painful thing I could ever experience, but like I said I am strong in my faith, and God has settled my heart.
Just made me so mad when he said that. Anyway, thank you for your kind words. I really hope we will get to the bottom of whatever is going on with me. My husbands cousin has MS (10 years now). She is convinced that is what I have. Who knows.
Praying either way :-)

Hugs,
Beth

[humming4u]

you just hang in there girl, and hang out here! theres all type of support from all types of suffering from the same issues  as you have.blood work is a good start, probally an lp is in your future if all blood work comes back normal.sorry your legs hurt so bad, did you ask if theres any meds that could help you, or even a sleep aid for your difficult nights
i'm wondering if your pain is spasms and if a muscle relaxant would help.
may god speed your journey towards a dx.
so sorry about your daughter,its impossiable to imagine your pain and loss as a mother myself, not that it changes your loss, but do you have other children?

[nikki861]

Forget to mention in 2001 I completely lost sight in my left eye for about half an hour. Has never been the same since. It was explained that my sinus were so swollen that they pressed against my optic nerve...........?? WHAT
Anyway,

Thanks

[nikki861]

Neuro. called and scheduled blood work for tomorrow morning. Like he said lets rule some things out and then go from there. Problaly a LP in my future. Hey, at least he is listening to me now. I know i dont feel well, and can not take another night like i had last night with the leg pain. I asked him what the white spots on my MRI were, and he said well sometimes they show up and we are not really sure. But does not look like MS. He knows about the problems with my left eye, so he says letsdo these tests and work our way onward.
Thanks for lending an ear,

hugs,
Beth

[nikki861]

Thanks for the support!

hugs,
Beth

[Want to feel well!!!]

I cannot give you any answers but only tell you to keep trying.  This is a good place to find support...vent away and don't feel likeyou are rambling.

Soooo sorry about your daughter.  My heart goes out to you.  I cannot imagine how painful that can be, but I agree with you that it does not mean you are suffering from clinical depression.

I hope you find some answers soon.  Don't give up.

Hugs to you,
Wanna