Well, D/C Tysabri for a bit or maybe longer than "a bit?"

[michelleric]

Turns out my vocal cord issue is NOT Thrush as I been told.  Got second opinion yesterday by the Chairman ENT @ Cleveland Clinic.  The reason why I have not had a voice for over a week, is due to Ulcers and Lesions on my vocal cords.  He "thinks" the other doc thought thrush, due to all the whiteness from these lesions.

So, not good. I wont get into a whole long dramatic story here.

Anyway, MS neuro called today, of course I couldn't pick up the phone and talk to her.  She told me on answering machine that she got a call from ENT, and we are stopping Tysabri for now, and various other things.

I am not allowed to even try to talk for a week and then we will see how it goes.

Always a new adventure.
Michelle

[nancihelp373]

Michelle,
Hi, I am new to the diagnosis even though it took many years to get one. I hope your voice clears soon and your neuro gets u back on the right track. I haven't started meds yet but I will remember your experience.

Feel better...

Nanci

[HVAC]

Wow that is terrible.

[grannyhotwheels]

So sorry Michelle... It just can't ever be anything easy can it?  Hang in there and do what the doctor says... My husband would love it if I couldn't talk for a week but I know that's got to be so hard...

Please keep us informed on how your doing...

I'll be praying,
Carol

[Lulu54]

Michelle, I so wish I could call and we could talk and commiserate about this twist for you.  I am so disappointed that your Ty has to be stopped.  I'm remembering that you were doing well on it.  

This just s ucks.  I am so sorry your health has taken this turn.

hugs,
L

PS when you get the energy, we really would like to hear all the story.

[Sidesteps]

Oh gosh Michelle,

I am so sorry. I hope this all gets cleared up quickly ... SO glad you got a second opinion though. Wow! What a direction change!!!

I hope you feel better soon.

Take care of yourself.