its been a while. I still read posts every day but harder to post from my phone. anyway, this new neuro that i saw in july and then again today. i like her. She did blood work and Vit. D is low so they had called in script for that a few weeks ago. had EMG and nerve conduction tests. shows pinched nerve in left side of neck and left arm. thought she would pawn everything off on cervical stenosis that showed up in last MRI in 2011. but she didn't.
neurologist talked about what problems cervical stenosis would cause and it could explain some of the new things going on, she had me to the normal few steps across room, finger to nose, hold out arms and right arm worse tremor. the stand with feet together. HA, none of the things i can do. had new MRI too. She says MRI just doesn't say MS to her.
Then she went on to talk a lot about PPMS and how it is different.( nothing that I had not already learned from posts here) so LP is needed. I go Tuesday to have it done. I'm a bit, ahhh ,stressed about that,but it needs to be done. hopeful it wont be a problem. strangely enough I'm hoping it will at last provide some answers. not going to hold breath on that.
I went in worried I was going to be dismissed as pinched nerve in neck, but i got some honesty i think. Neuro said that the neck stuff doesn't explain all that she sees going on. she is trying to get me into some PT for balance, and said they might want to try a walker. yeah like i could find a job that way. truth is my friends are probably right - its time for disability, but but grrrr. anyhow, that was off topic. Neuro also is requesting a swallow study and eye exam.
I think this Doctor has at lest made me think all docs not so bad or cold. Oh btw, the clinic told me there is nothing they can do for me and no need for them to see me again, oh well maybe for scripts so made them for 6 months and see ya in 6 months. really thats fine with me but it kind of felt bad to be told that. we can't help you so go crawl under a rock somewhere. sigh, ha.
my follow up appointment isn't till February, I can't complain, she sees me for free or whatever grant thing they have. I'm glad she didn't just drop me. and she said if the LP comes back normal then it might be multifocal syndrome....i'll google that but i guess its from different things creating the problems instead of just one thing.
well, thats whats going on with me, thanks for listening, i needed to share that. now off to search posts for LP advise. :-}