Thanks Erin for your answer. How long did you stay on Copaxone before you switched?
Jenny,
Count me as a yes! I think I am the post that Mand was talking about (the Avonex user). I am losing hair by the handfuls each day and the nurse that calls to check on me said that 4% of people in the trials reported hair loss as a problem, yuck.
I am sticking with it for the time being as I have already been on copaxone and it failed to stop my progression ( I didn't lose my hair on that one). If my MRI in Sept shows that I am stable then I will just have to deal with losing my hair even if it means looking at wigs. My Aunt has Lupus and has some fantastic wigs. I think they will feel terrible but I will worry about it when the time comes.
Erin :)
Well I have been reading on another forum that it can happen will all of the meds iincluding copaxone which really surprised me. I was just wondering how many on this board experienced it.
Hi Jenny
I'm pretty sure that I have seen someone on this site ask about hair loss with Avonex, maybe they will see this and answer you.
Mand