very confused

[melben68]

I have psoriatic arthrits, fibro, and cfs...in august, i got numbness in my left lower leg.  A month later, I am numb from my neck to my toes, and cant work.  Now, 5 months later, I still have numbness, walking is very difficult, can barely use my hands due to cramping, muscle twitches, spasms, tremors, urinary and bowel problems( due to numbness factor)....doc says I have all the classic symptoms of MS, but 4 mri's of back and brain, spinal tap, emg, evoked response....all show NO MS!!    Any ideas?  Is it possible to have ms with all the tests being negative for it??  My docs are dazed and confused, and say they have ruled out everything possible.

[melben68]

I have a neuro, but a lot of times I have my doubts if she is good.  lol  I've had the MRI's of the brain, and all 3 sections of my back.  I've been told they have ruled out many diseases.  The Humira was working very well for me, but they pulled me off of it in the beginning of the numbness thinking it was a drug related issue.  They even hospitalized me and put me on 5 days of IV prednisone.(had to give me a valium to get the IV in), and that did nothing.  Well, that sure hasn't panned out.  Been off the meds for 6 months now, and guess what??  I'm still numb!!  

[Sumanadevii]

It's too bad that you have that phobia.  It has given my sister a new life.  Without it she could not function.  I saw how bad she was for years before being treated with it.  Is it possible to work with a psychologist to help you overcome the phobia?  Truly it makes the difference if my sister can work or even care for herself.  I know that the medication is very expensive and even with insurance it is costly.  The drug company is good about helping with part of the expense.  Again, my sister and I talk often and many of our symptoms are alike...the fatigue, the pain, walking, spasms, etc.  

Have you been seen by a good neuro?  Have you had MRI's of your brain and spine to be sure you are only working with one disease?  

[melben68]

I have been on enbrel and humira so far.  I'm very needle phobic so we havent gone through IV yet....lol...I'm even worse about IV's...when the numbness started, the doctors pulled me off a lot of my meds, mostly the ones for psoriatic arthritis.

[Sumanadevii]

My sister has psoriatic arthritis and takes Remicade by IV monthly.  It has made a tremendous difference in her pain level.  We talk often about our symptoms being alike in so many ways.  I am just wondering if your doctors have treated you with Remicade?