Aa
About to lose my MIND!!
Ok so I talked to the nurse today and she said the radiology report say no c-spine lesions but one brain lesion. So I had to send the 2007 MRI films to them so they can compare them just to see if I have a lesion in a different area than back in 2007.
Here is what my 2007 said.
Abnormal right optic nerve demonstrating enhancement without mass lesion along its intraorbital segment. Imaging findings compatible with On. Additional note is made of a a small nonspecific area of increased signal associated enhancement in the right posterior frontal sub cortical white matter. this may represent a concomitant area of active inflammatory disease such as that may be seen with acute demyelination. Clinical and MRI follow up is suggested.
On Friday the doctor told me he thinks I am in the 5% of people with MS who have no lesions. He said my neuro exam test are positive for MS.
No c-spine lesions is a huge relief!! Any thoughts on all of this. What do you think about my 2007 MRI? My MRI on Friday has a lesion but of course it is not in the "typical" place for an MS lesion. I can't even have MS the normal way!!! It is frustrating.
LA
Here is what my 2007 said.
Abnormal right optic nerve demonstrating enhancement without mass lesion along its intraorbital segment. Imaging findings compatible with On. Additional note is made of a a small nonspecific area of increased signal associated enhancement in the right posterior frontal sub cortical white matter. this may represent a concomitant area of active inflammatory disease such as that may be seen with acute demyelination. Clinical and MRI follow up is suggested.
On Friday the doctor told me he thinks I am in the 5% of people with MS who have no lesions. He said my neuro exam test are positive for MS.
No c-spine lesions is a huge relief!! Any thoughts on all of this. What do you think about my 2007 MRI? My MRI on Friday has a lesion but of course it is not in the "typical" place for an MS lesion. I can't even have MS the normal way!!! It is frustrating.
LA
Hi Kathy,
I just worry too much. I am going to try to NOT worry about it. None of it matters anyway since he said I am positive for MS even with a clear, which my MRI was not clean.
I will just be happy to move on past this point. I suppose this does not change the PPMS part of the situation. But it does get rid of the Devic's possibility that others have suggested. I had never really looked into that possibility. But with the brain lesion and no c-spine lesion I do not have to worry about it now.
LA
LA
I just worry too much. I am going to try to NOT worry about it. None of it matters anyway since he said I am positive for MS even with a clear, which my MRI was not clean.
I will just be happy to move on past this point. I suppose this does not change the PPMS part of the situation. But it does get rid of the Devic's possibility that others have suggested. I had never really looked into that possibility. But with the brain lesion and no c-spine lesion I do not have to worry about it now.
LA
LA
Hey, don't lose your mind, we don't have any spares lying around!
Seriously, if your neuro says your diagnosis is solid, then it is. Your neuro exam is apparently positive enough to diagnose you, a clinical diagnosis.
Unique isn't bad, if you have a good doctor.
Kathy
Seriously, if your neuro says your diagnosis is solid, then it is. Your neuro exam is apparently positive enough to diagnose you, a clinical diagnosis.
Unique isn't bad, if you have a good doctor.
Kathy
Crazy isn't it.
I know this is not going to change my dx because it was that first MRI that got me diagnosed but it is still frustrating.
And my neuro said everything looks like MS even with a clean MRI.
I just want a solid dx and all of this to stop!
LA
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