what can mimic MS and is genetic for woman?

[chefaid90]

So what could only woman have that is genetic that looks very much like MS? Since my pcp is still convinced it is MS unless it is something extremely rare. My mom and both my sisters and me all deal with muscle fatigue, muscle weakness this is a common thing we all have but both me and my mom are way more advanced than that. I know I havent been on in awhile but hope everyone will remember my full range of symptoms. the only test that has come back as is only slightly off is my VEP. My emg is only very minimunlly off and everything else is negative. The muscular neurologist is thinking it may be hereditary. I am the middle daughter out of three of us. My older sister, younger sister and mom all have tested positive for fibro but I dont (not even 1 trigger point)  test for any points. I am getting worn down but this waiting so long inbetween appts. I want to know whats wrong with me and what is causing such a rapid decline in the past 2 yrs. I went from out walking the kids to needing a rest just walking some stairs and get totally wiped out walking in the grocery store. I just hope that my muscular neuro isnt putting all his hopes on it being genetic to only find out years later it isnt. I just really want some help for what is going on. I am tired of being tired and worn down and zapped off all energy and the pins and needle and numbness just needs to go away. And while we are at it can i have my vision in my one eye back to normal please. UGH sorry for the rant.

[chefaid90]

they have tried neurotin, skelaxin, a pleathera of muscle relaxors. Plus a few more I dont remember their names.

[Karen99]

Hi. Has any of your doctors tried medication to treat your symptoms?

[Ricobord]

This is an interesting study sent to me by a relative with Fibro. She says a few women on her side of the family have it. I don't know if it will be useful for you as it doesn't sound like you have Fibro, but it might be worth a look or perhaps showing it to your neuro.

http://www.prohealth.com/library/showarticle.cfm?libid=16888

[dogmum]

Just wanted to say hi and that I am in kind of a similar situation.  I go to the MS department for my appointments, am followed by doctors who think I have MS, but regardless of my many symptoms, they say I don't have enough evidence on the MRI to get a firm dx (whatever that means).  

I know it's an emotional rollercoaster and frustrating to know that something's wrong and not get anywhere with getting answers from your doctors.  I can only encourage you not to give up though, but to take it a day at a time.  

Hugs, and if you ever need to chat or let off some steam, feel free to send me a message.  

Wishing you well...
Laura

[chefaid90]

i went over the list and nothing fits. nothing explains all that i have. I am tired of going from one doctor to the next. I see two different neuro's, 3 different eye doctors (all in same group) my pcp and NO ONE WILL TELL ME WHAT IS WRONG. My pcp is convinced its MS even though my mri comes up clean, he says its the only thing that fits everything I have going on but my darn neuro's say it cant be because of the clean mri and spinal tap. Aside from some weird very rare thing he said he cant see it being anything but MS and wishes they used the old criteria to dx me. I just wish there was something anything someone could do to help me. to try to relieve the pain, the pins and needles, the eye problems, the fatigue, the muscle weakness, the crappy way I walk now, and give me back my life.

[chefaid90]

thanks will look at this page. I have gone through 3 neuro's, now have a  team of a neuro and a muscular neuro. I am at a point in my life I just want an answer. I dont know how much more fighting I can do to find out what is wrong with me. I am losing hope and losing myself.

[Lulu54]

No fair!!! You should not be still looking for answers and a treatment, but you also know how this can drag on and on.  I'm sorry you are stuck in this limbo and can only suggest you try a different doctor who can look at your with objective eyes and perhaps spot something the others are over looking.  

You might want to look at this article about MS mimics and see if anything else there might fit your situation.


www.msfocus.org/article-details.aspx?articleID=18

here's to finding answers, L