Hi guys -
So I'm going to post my log - I appologize in advance if it's just TMI, but I have tried to keep it as seccent as possible. My question is, last MRI came up unchanged. My symptoms are not really that bothersome, except inasmuch as they worry me that something other than Lupus is going on. So IF it looks to you like MS, does it look like a primary progressive pattern? Which can't be treated effectivly anyway so is it worthwhile to pursue a Dx? AND ALSO - IS THERE ANY OTHER Dx FOR THESE SYMPTOMS THAT MAKES SENSE TO YOU???
if you want to mark which of these symptoms sound like MS and which sound like something else that would be helpful. Keep in mind I have Lupus, though it is a recent dx. I also want to mention the migranes, I am 51 years old already but the migranes are new to me, never had them as a young woman.
I'm sorry to post all this, I wish I could just relax about all of it but it's bugging me too much.
duration ongoing intensity
2004 fall passed out - Berkeley once
constipated, urinary issues ongoing x 3-4
feel like always need to urinate x 2
2007 fall problem getting eye rx ~1 month
passed out at golds gym once
dx low blood sugar
? ? jiggly eyes, high, floaty ~week 1
2008 fall winter raynards freq seasonal x 2
super fatigue occasional x 3
high floaty occasional x
joint pains rarely 4
prob word finding sometimes x
confusion, concentration, reasoning sometimes x
2009 Jan positive ANA, dsDNA,elev C3 or C4
super fatigue 3
vit d deficiency - corrected
2009 spring mouth sores, weekly x 1
joint pain, night pain rarely 4
2009 summer dizzy aft walking -aft sun exp &exerc frequent x 3
fell twice
2009 LaborDay severe dry eye 3 mos x 4
to Jan 10 nausea, vomiting 3mos
swallowing problem ongoing x 2
globuls feeling always x 1
GERD, urppy, cough ongoing x 2-3
knee, hip night pain, can't walk rarely 4
pain, numbness in index finger occasional x 2
developed tinnitus ongoing x 2
started plaquinell and GERD med
eye plugs installed, strt restasis
dx SLE
2009 Oct San Antonio skin sores rarely 1
small itch, bleeding spots from sun 1
2010 spring event aft walk lunch hour:
momentary loss of sensation in right hand once 3
dizzy, disoriented, confused occasional x
peripheral vision impaired once - breif
spring episodes of dizziness occasional x 1-2
spring ridiculous itch once x 2
10-Feb off of plaquinell 30d see if tinnitus resolves
joint pains return during drug holiday
tinnitus did not resolve
spring constipation turned to IBS x 4
constipation can be constant chore constant xx 4
increased digestive issues, gas, belching 2
vomiting rarely
poorly digested waste
buzzing - elect chills occasional x 1
2010 summer fleeting intense head pain occasional 3
2010 Nov MRI four white spots
2010-11 summer through winter felt GREAT
2011 spring sailor legs & eyes frequent x 2
flushing - (butterfly rash?) frequent AMs 1
2011 April Omaha migriane, huge pain once 4
left side behind eye, tearing
light sensitive, lasted 3 hours
repeated every day x 3 days
2011 30-May Migrane, 2 day -cluster headache 3
1-Jun noticed twitches muscle movement many x hourly 1
tripping daily 1
lips and fingers tingly
June 5th sparkley visual show - kalydascope like
one other note for clarification, I sometimes travel for my work, it seems like this aggrivates my health so I've noted various trips in my log, just to help me remember.
thank you for your review and comments.