Thanks Barbara. I too have resided myself to my new way of li living. I am still working, but find it increasingly difficult to function both mentally and physically. I do live in a cold weather climate, but prefer it to the warm weather, which makes me even more lethargic.
I do not take any prescribed pain medicine and although alcohol sometimes gives me temporary relief, I am only an occasional drinker at best and to date have not relied upon it.
Please keep me informed as to your recent test results. Thanks again.
I had mono when I was 14 years old and never was the same again. That's what triggered the onset of all my symptoms of pain and palpitations from mitral valve prolapse, fatigue, sensitivity to cold weather. I have to live in the deep tropics. That's why I moved to Guam almost 18 years ago. I have most of the symptoms of Lupus now including temporal lobe seizures. I am getting an echocardiogram today, the second one in 16 years and also had the blood tests taken for Lupus or arthitis type diseases last week. That info should be here in about two weeks.
I was previously self medicating with alcohol to relieve the symptoms because back then I could not get satifactory medical care. I have since finally quit drinking but take medications for anxiety, pain and anti-convulsants. The pain reliever is non-narcotic, called Ultram and it is very effective for pain relief and mood elevation as well.
The meds make me very sleepy now but I eould rather be sleepy than always in pain and stressed to the max. I still function at my job although it takes alot more concentration. I'll just have to get used to it.
I don't no if any of this is helpful info in your case but the mono EB virus does stay with you. I still have the antigens for it, indicating active disease although chronic and not acute.
Dear CB:
It is difficult to tell you for certain. I would say that since the exact same symptoms are occurring, that most likely the tests would all be the same. However, that should be taken with a grain of salt. As symptoms persist and worsen, there are times that a minimally detectable abnormality will become manifest and therefore be diagnostic. There may be a point in getting a second opinion concerning you symptoms and see what a new pair of eyes looking at the data, and another exam might come up with. I would recommend taking a second look.
Sincerely,
CCF Neuro MD