Attention: head pressure, pressure in head, headache people!

[Citizen T]

Hello everyone, after suffering for nearly 2 years with a mysterious neurological-like condition, I have almost given up all hope of living a normal life again. After a whole lot of research on the net, I have run into several postings with people describing my condition almost down to the exact letter. However, many of these posts are on some obscure website with the postings being months or years old. The purpose of my post here is to *hopefully* unite those of us who suffer from this unexplained condition.

The one symptom that seems to bond us all together is a constant "pressure" sensation behind the forehead and beneath the front top of the head. The way people describe this varies according to personal expression, but it is usually best described as an expanding sensation behind the forehead as if the brain is growing larger with nowhere to go. The headache is dull, non-throbbing, and does not get worse with exercise. The patient will also describe a sort of "perpetual dizziness" that may be constant or may come and go again. Usually, but not allways the patient will describe the sensation of having a constantly blocked nose even in the absence of any type of discharge or sinus infection. Most but not all patients will describe a feeling of tension or stiffness in the cranial muscles, especially in the forehead.

[Cj7fanatic]

Id also like to say this all started with a huge panick attack, also if anyone does comment please include what if any drugs you were taking ex: weed,coke. I smoked weed for three years heavily and I had to stop it brings on the pressure in the most intense way

[anabana121]

Hey, did you ever get an answer? The same thing happened to my ex, she's still going through it. She had pot brownies and was taken to the hospital because she was having panic attacks. It's been almost a year and a half and she still has this pressure/twisting sensation in her head and nothing seems to help. Steroid shots don't do anything and her doctors tell her that its all in her head, but she cries out in pain everyday. You cannot fake something like that. We cannot find any answers and she's getting frustrated and down

[Cj7fanatic]

I am 22 years old and have been experiencing this pressure in my forehead for 6months now all day everyday I too have had blood work and scans done, during the second month I had gotten extremely sick every morning and all symptoms would go away in the afternoon i had experienced this for about a month and now it is back to just the pressure all day long it now moves to my back teeth to my forehead I am on nortriptyline and I take magnesium I also have been on a homeopathic cleanse although I'm not a 100/   I HAVE BEEN FEELING  BETTER

[IwishIknewTheAnswer]

Do you have brain fog?

[FeelLikeImGoingInsane]

I can empathise with all these symptoms as I seem to have most of them (or a variation of them) and have had for the past 5/6 years.  My doctor has quite literally told me he can't do anything.  These symptoms have gradually become worse over the last six months, he has put most of these down to arthritis in my neck/head and a drop of 30 degrees in blood pressure when I stand up.  I quite literally feel like I am going mad.  I've been prescribed Nortriptyline (which in itself can cause some of the symptoms), Amitriptyline (which cause hallucinations).  None ease the lightheadness, nausea, out-of-control/dying feeling.  Surely there are some specialists out there that can help? Here is a list of my symptoms which occur all day everyday!
Headache, front of skull, top of skull, temples.
A constant crushing sensation in the skull, like it's going to explode.
Stabs of pain all round the skull.
Cracking noise and a flash of bright lights when trying to go to sleep, in my head, between my ears.
Feeling as though walking on a spongy surface, floor coming up to meet me and the walls moving around.
Feeling as though on a fairground ride, going up and down, causing nausea.
About to feint all the time.
Palpitations constantly, but can't have any more Propanalol because it causes my blood pressure to drop even more.
Pounding in the ears.  Can't stand high-pitched noises or bright lights of any kind.
Pins and needles in hands and feet.
And here's a funny one - can't sit on the toilet without feeling as though I'm falling down it and my body keeps readjusting - crazy I know.
Any ideas anyone!

[Landspeedracer]

I just pecked away for an hour an a half laying the ground work of a lifetime of uncontrollable. Hypertension, life threatening Pulmonary Embolism, a heart attack followed within a month by three strokes that created 100% memory loss for me and put me in a wheelchair for two years and I got out through shear determination and hard work. During the early years of heart Desease I devolved Parkinson's Desease and Rheumatoid   Arthritis. I was just getting to the comparison where I complained to my Doctor that I felt aware of my brain and it felt like it was floating around in my head touching my skull in my temples and in the top of my head and it only did this when I get up and walk around. I also become very dizzy and sometime a little nauseous.
But the mist miserable I have ever been is in late évening and sometimes into early morning when I fall asleep for a couple of hours or longer and then wake up I am in such pain I can almost not tolerate it..I feel like thousands of pins are sticking me in my forearms, back, waist, buttocks, and legs down to the tops and bottoms of my feet. It is a sickening pain that makes me angry at myself and the world. The dizziness is getting worse and I have no stamina or endurance. Can someone help me ?

[ill13632]

Dear Doctor,
I've had neck swelling for 2 years and the back of my head went numb from loss of blood flow and I was disfigured and lost my sight from Bell's Palsy.  I began taking rocephin+gentamicin+clarithromycin and for 8 days I had neck pain and the swelling went down some.  I am waiting for a Lyme Elisa test and have been disabled from brain fog and central apnea, PLMD seizures, hypnic jerks.  
what kind of infection do I have?  Thanks so much