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Communicating Hydrocephalus - infant
About 2 weeks, my 5 month old daughter was diagnosed with communicating hydrocephalus. She was born perfectly healthy and all her doctors her happy with her. But last month her Paediatrician noticed a sudden head growth which he said if it continues, we might have to do an MRI. It turned out to be this condition.
They have subsequently inserted a VP shunt & she's home recovering from. But the constant worry doesn't stop. My wife & I are devastated. She's our 2nd & we lost our son due to medical complications as well. Is there anything we can do to ensure that she leads a normal life like other kids? Would she be a candidate for ETV? Any highly recommended paediatric neurosurgeon in the US/Europe? willing to go to the end of the world to ensure she gets the best possible treatment...Please help/advise.
They have subsequently inserted a VP shunt & she's home recovering from. But the constant worry doesn't stop. My wife & I are devastated. She's our 2nd & we lost our son due to medical complications as well. Is there anything we can do to ensure that she leads a normal life like other kids? Would she be a candidate for ETV? Any highly recommended paediatric neurosurgeon in the US/Europe? willing to go to the end of the world to ensure she gets the best possible treatment...Please help/advise.
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