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Confoooosed.com

Hi I am new here, I am 45 and have RRMS dx in 2007.

My question is that I've suffered with visible fasciculations (or popping candy as I like to call it ) in both my calves for approx 2 years now last week my Neuro seems to have associated it in his opinion related to arthritis or sciatica!?!?!?
He also said it was a NON MS symptom which I kinda get cos that is CNS not PNS but everyone I have spoken to with this symptom has MS?!?!
Obviously I have done my research and can find no association to either of these conditions - I may be wrong though so can anyone help clear this up for me?
I would like to say to that if I hear my Neuro dismiss ALL of my symptoms as NON MS RELATED I will scream....my pain is real, it's constant, it's daily and never ending I would gladly let you take my pain and limitations for just one day cos maybe then you would a better understanding. It's amazing that he actually acknowledges my RRMS bless.
I'm so sorry I don't fit into your little box of stereotypical MS Mr Neuro but there you go and I also have another auto immune disorder Hashimoto's which have some bearing / crossover with my MS, not sure?

Thanks hope you can help :)
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Avatar universal
Hi I do know that I have RRMS - relapsing remitting MS diagnosed in 2007 and I had a partial Thyroidectamy in 2000 but I still have symptoms for over-active as well as under active thyroid.
I've noticed that a lot of people are tested on much of their vitamin levels where as I am not, I've never had a discussion with anyone about diet / supplements and MS etc
Trying to get answers with my current Neuro is like banging your head against a brick wall. Soooooooooo frustrating!!!!!! Aaaarrrggghhhh!!!

It's rather like a postcode lottery in the UK, that said whilst I am fortunate enough to be having Tysabri infusions under one of the top 5 in the UK I am dissatisfied with my doctor big time. :(
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620923 tn?1452915648

  I have a condition that caused similar symptoms as you described and they are similar to MS...but not...and I have Hashimoto's too!

There are several  different conditions that have or share the same or similar symptoms to MS.....so continue to have testing and be happy if it is not MS...JMHO.

I do know how frustrated you are not knowing what is causing your symptoms....but take your time rule things out...

Hang in there <3
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