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FACIAL SWELLING
INTERMITTENT RT SIDED FACIAL SWELLING ???????COULD THIS BE A MS THING?I WAS DX WITH MS DIFINETLY 2.5 YRS AGO.I HAVE BEEN PLAGUED HOWEVER FOR 20+ YRS WITH VARIOUS SYMPTOMS ON AND OFF AGAIN. I AM 59 YRS OLD AND YOU WOULD THINK I WOULD BE USE TO THIS ,BUT ONE OF THE STRANGEST AND BOTHERSOME THING THAT HAPPENS TO ME IS THE RT SIDE OF MY FACE SWELLS UP. SOMETIMES IT ACHES OTHER TIMES IT DOESN'T. I HAVE HAD ALL KINDS OF BLD. WORK AND X-RAYS. BEEN TO DENTISTS,NEUROLOGIST.I JUST HAD BLD WORK AGAIN AND THE ONLY TEST THAT IS SLIGHTLY ABNORMAL IS THE C-REACTIVE PROTIEN WHICH IS 12.9..THE ESR IS OK. THE DR. IS GIVEING ME PREDNISONE AGAIN BUT I WAS WONDERING HAS ANYONE ELSE HAD THIS PROBLEM FO ALONG TIME LIKE ME??
I have been taking trileptal for 4 years and I'm now taking the generic. It seems as though when I'm extremely stressed over my finances, or just anything this causes sever pain and swelling. I really don't want to have surgery. I'm going to visit the neuralogist this afternoon. The generic is 600mg taken 3x's a day. I wasn't able to eat yesterday and talk much due to pain with swelling on the left side of my face. I took an inflammatory pill for my sore right arm and to my surprise I was able to eat breakfast and talk without pain. Also, I praise God because my girlfriend had prayed for me this morning. Let's be encouraged and enjoy life day by day.
Jewette, Pembroke Pines ,Fla.
Jewette, Pembroke Pines ,Fla.
Hello Chump,
I understand you very well, because I have swollen right side of the face, but also under the chin. Long time ago, I had a shot from one Neurologist in Germany, and all my pains were over. Diagnosis: Trigeminal Neuralgia. It was good for five years, and then came back. I was no more there, so I forgot about it. When I told that here, they didn't believe, because is not typical Neuralgia Trigeminal. It comes from the neck muscles. I feel, how is going this pain: from the bottom of the neck over the head, direct to the right eye and right jaw bone. At the same time, my face is strange swollen.There are also two other Neuralgias: Occipitalis (C2), Suprascapularis (C5), connected with shoulder.
In my case, I have diagnosis: Entesopatia Levator Scapula (swollen shoulder muscle, they think, I had some injury). This muscle is going behind right ear, and from there to the face.For me are good drugs for muscle spasm, with hydrocloride (don't know, why?) and warmth! I have also Hypotireosis (thyroid is to small and works to slow). Thyroid can cause many other pains.
I am looking for a help for my muscles. Wish, that you find help, too.
Ms. Bobbie, Slovenia
I understand you very well, because I have swollen right side of the face, but also under the chin. Long time ago, I had a shot from one Neurologist in Germany, and all my pains were over. Diagnosis: Trigeminal Neuralgia. It was good for five years, and then came back. I was no more there, so I forgot about it. When I told that here, they didn't believe, because is not typical Neuralgia Trigeminal. It comes from the neck muscles. I feel, how is going this pain: from the bottom of the neck over the head, direct to the right eye and right jaw bone. At the same time, my face is strange swollen.There are also two other Neuralgias: Occipitalis (C2), Suprascapularis (C5), connected with shoulder.
In my case, I have diagnosis: Entesopatia Levator Scapula (swollen shoulder muscle, they think, I had some injury). This muscle is going behind right ear, and from there to the face.For me are good drugs for muscle spasm, with hydrocloride (don't know, why?) and warmth! I have also Hypotireosis (thyroid is to small and works to slow). Thyroid can cause many other pains.
I am looking for a help for my muscles. Wish, that you find help, too.
Ms. Bobbie, Slovenia
A very good question
WHY IT CAN GO AWAY FOR LONG PERIODS OF TIME AND THEN WHEN I GET THE "MS FATIGUE" BAM IT COMES RT BACK?.
Because the Persistant TRIGEMINAL Artery reported to cause several persistant things including craniofacial pain (NOT SWELLING), trigeminal Neuralgia (but nothing you mentioned points at apossibility of TN), or pituitary dysfunction, paralysis, buldging of the eyes, or pulsetile neck swelling...ext ,which are not the case here
The question is it the MS fatigue? did you try the anti fatigue therapy for it? or its an add on of a new autoimmune diseses " Melkersson-Rosenthal syndrome" ?
Bob
WHY IT CAN GO AWAY FOR LONG PERIODS OF TIME AND THEN WHEN I GET THE "MS FATIGUE" BAM IT COMES RT BACK?.
Because the Persistant TRIGEMINAL Artery reported to cause several persistant things including craniofacial pain (NOT SWELLING), trigeminal Neuralgia (but nothing you mentioned points at apossibility of TN), or pituitary dysfunction, paralysis, buldging of the eyes, or pulsetile neck swelling...ext ,which are not the case here
The question is it the MS fatigue? did you try the anti fatigue therapy for it? or its an add on of a new autoimmune diseses " Melkersson-Rosenthal syndrome" ?
Bob
THANKS FOR YOUR THOUGHTS ON THE FACIAL SWELLING. I DO KNOW I HAVE A PERSISTANT TRIGEMINAL ARTERY ON THE RT SIDE OF MY BRAIN BUT IF IN FACT THE SWELLING IS FROM THIS I JUST WAS WONDERING WHY IT CAN GO AWAY FOR LONG PERIODS OF TIME AND THEN WHEN I GET THE "MS FATIGUE" BAM IT COMES RT BACK.
Hi,
Once a person is diagnosed with an autoimmune presumed disease like MS, then an association with few others could happen as we age , plus if the MS was treated with certain immune modefynig therapies (Steroids, INF, chemo..ext) then the chanc of strange infection with some rare organisms could happen!
Based on that , and on the description you provided , I think you have a Melkersson-Rosenthal syndrome, a diseas most know of having both side of the face involved and presenting in a triad of symptomes of recurrent facial palsy, orofacial swelling, and a furrowed tongue , BUT, it was reported to present exactly as in your case of only facial swelling (recurrant), some time with and others without pain (only 30% will have the full triad !! anyway, Orofacial swelling is the most consistent and dominant feature)
The pathogenesis/ causes unclear? an immune-mediated inflammatory reaction appears to be central
The differential diagnosis includes any mimicer
1-skull-based infections
2-contact dermatitis
3-syphilis, tuberculosis,HIV, EBV,CMV
4-sarcoidosis,
5-and Crohn disease.
The diagnosis is by exclusion of other possible causes so, you will need an experienced Dermatologist (make sure has enough white hair) for a possible biopsy of the swollen tissues to rule out any granulomatous tissues and to send it for various cultures and few other teasts that may help e.g serum gallium scan
About C-REACTIVE PROTIEN is becoming more and more a reliable protein in several fields rather than the ESR.
Bob
Once a person is diagnosed with an autoimmune presumed disease like MS, then an association with few others could happen as we age , plus if the MS was treated with certain immune modefynig therapies (Steroids, INF, chemo..ext) then the chanc of strange infection with some rare organisms could happen!
Based on that , and on the description you provided , I think you have a Melkersson-Rosenthal syndrome, a diseas most know of having both side of the face involved and presenting in a triad of symptomes of recurrent facial palsy, orofacial swelling, and a furrowed tongue , BUT, it was reported to present exactly as in your case of only facial swelling (recurrant), some time with and others without pain (only 30% will have the full triad !! anyway, Orofacial swelling is the most consistent and dominant feature)
The pathogenesis/ causes unclear? an immune-mediated inflammatory reaction appears to be central
The differential diagnosis includes any mimicer
1-skull-based infections
2-contact dermatitis
3-syphilis, tuberculosis,HIV, EBV,CMV
4-sarcoidosis,
5-and Crohn disease.
The diagnosis is by exclusion of other possible causes so, you will need an experienced Dermatologist (make sure has enough white hair) for a possible biopsy of the swollen tissues to rule out any granulomatous tissues and to send it for various cultures and few other teasts that may help e.g serum gallium scan
About C-REACTIVE PROTIEN is becoming more and more a reliable protein in several fields rather than the ESR.
Bob
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