Feels like I'm vibrating!

[smg2]

I have started feeling like my body was "vibrating" - not spasms, or jerking - like there is a vibrator in my body.  Feel it most in the back, but everywhere else too.  Mostly happens when I am sleeping or relaxed - it will wake me up, but has happened once when standing. Does not hurt - just very disconcerting.  What is it?  Who do I go to for it? What words do I use to check the internet?

[Annie62]

What is going on with you is complicated and obviously difficult to understand, so I don't know if I have much to offer.  Just a few things, though.  Though it's not clear what is causing your constipation/bowel problems, you did mention you had several gastric emptying scans.  I'm not sure why they are different each time (slow, rapid, normal times), but possibly you have intermittent  gastroparesis (not sure what would cause it to fluctuate though).  If you haven't already tried domperidone (promotility drug) you might want to ask your doctor about it.  I order mine from Canada and get a pretty good price on it.  It helps me some (with bloating, pain, etc., from the gastroparesis).  Unfortunately, Zelnorm is being taken off the market so that is no longer an option.  

Regarding your low blood sugar, how do you know that isn't related to your stomach also?  I have been having more episodes of low blood sugar since my gastroparesis has gotten worse, most likely due to the uneven/delayed time it takes for the food to leave my stomach, be absorbed by my small intestine and enter my bloodstream.  If you have delayed stomach emptying that could affect your blood sugar levels.  

If I were you I would try to get in a question to the forum neurologist, though it will probably be few weeks, or go straight to a univ. hospital/major medical center and see if they can figure it out.  If you are in graduate school maybe you are near a good one.  

I also experienced a link between fluctuating hormones (at time of ovulation every single month) and acute exacerbation of all my symptoms. You said you were no longer having periods at 25 or 27.  What do the doctors think the cause of this is?  Have you been worked up for thryoid and other endocrine disorders?  I went through an early menopause at 43 (not exactly premature ovarian failure, but earlier than the norm) and I believe it is due to my autoimmune autonomic neuropathy.  

I'm not sure I understand the connection between your neck and bowel problems (something to do with the vagus nerve?)--I'd have to go back and read what you wrote--but possibly, if the vagus nerve is involved, you do have some type of autonomic neuropathy problem.  Autonomic dysfunction is complicated and hard to diagnose-or at least to identify a cause in every case, so maybe if you had the chance to explain your symptoms to an autonomic dysfunction neurologist he/she would be able to figure it all out.  

[amifergison]

I found this website interesting http://www.jeffmann.net/NeuroGuidemaps/spinalcord.html

[kdosreis]

wow... I'm glad I'm not crazy!!!  The first time I experienced the head vibrating was January of 2006.  The doctor thought it was possibly a precursor to a migrane, gave me some medicine for migraines and sent me on my way.  It did not work.  He did a CAT scan Xrays & blood work all showed nothing wrong.   After about 2 weeks of constant vibrating it just stopped.  it started doing it twice over the course of the year but went away after a couple of days.

Last week it started again.  It's pretty constant but gets more intense at times.  Trying to explain to a doctor that your head is vibrating inside while it's not actually moving does make one feel crazy!

Unfortunately I no longer have medical insurance, so visiting a nurologist is pretty much out of the question for now...

[riverman]

I also have this sensation; it seems to be centered down by my bladder. Just below my naval, centered and about 1/3 of the way inside my body. It feels exactly like I have a small cat on my lap, gently purring, with rhythmic pulsing. It only started this week, and its starting to drive me nuts.

I just googled 'vibration in abdomen' hoping to find a good resource for this, but instead this thread is the only thing I have found. That worries me.

At first, last week, I found myself reaching or my cellphone (which I keep set to vibrate), but it wasn't. Then this week when I began to be able to isolate the sensation, I started to think that it had something to do with how I was standing or something....like maybe the joint in my hip or knee was stiff and 'creaking' or something. (I'm 48, BTW)

Today, I started wondering if maybe the sensation has something to do with my breathing. I am just recovering from bronchitis, and I was hoping that maybe my lungs were wheezing at a very low frequency that was being felt in my abdomen. But I can tell that its not related to my breathing at all.

Is there a name for this? I really would like to find out what the heck is going on, and hopefully make it go away. I don't think I can get used to this....

[*Robin*]

You described the vibrating sensation in my head perfectly. It just happened today when I got up from the chair at my hair salon. I have never felt anything like it before.

I've been having strange symptoms since November, and it looks like my diagnosis going to be Lyme Disease. I came up negative on the ELISA test, but I had 3 positive bands on the Western Blot.

I have my first appointment with a Lyme Doctor on Monday.

Did you have your MRI yet? Did it show anything?

[lstruman]

I asked my neurologist about the vibrations the other day and he was the only one who did not look at me crazy ! So I said well What the *** is it he said that they call it abnormal sensations ....lol well duh !!!!

Well atleast it is acknowledged ....
I believe it has something to do with the chiari malformation . Just my opinion . I personal have not had a viral infection , just brain lesions and a sagging brain , i like to say  i just have such a large brain it cannot all fit into my skull so it is falling out .

Better to laugh than cry i suppose .