Is it possible to not have surgery and still live a semi-normal life? Or is surgery inevitable.
Hi there, I also have hydrocephalus was diagnosed over 2 years ago. I had a third ventriculostomy operation when my symptoms were starting to get worse. (symptoms that raised alarm bells with the neurologist were heavy legs: I felt like my feet were stuck to the ground and I also had balance difficulties) I have been told that part of the hydrocephalus symptoms are cognitive and organisational difficulties. I have trouble with planning different things every day..it can be very frustrating.
Your son should definately keep in touch with a neurologist or neurosurgeon, maybe just once a year just to be safe...thats what i do now every year, Doctors may notice changes that we are unaware of.
I just recently joined this site in the last few days, I am hoping to finally make contact with others who also have hydrocephalus. Please feel free to message me with a reply..it would be great to hear from you and your son.
Goodluck with it all