Is this MS, Lyme, something else...can't get any answers.

[Klinktc79]

About 5 years ago, there were a couple of months during which I would feel intermittently lightheaded . It was annoying but only happened a few times, so I didn't worry. I then went for about 2 years until the same lightheadedness came back, this time along with frequent urination (no urgency, just felt like I needed to go alot more than normal), mild headaches, and fatigue. This time, it occurred much more often over the two-month period I was having symptoms. In Fall of '04, the aforementioned symptoms returned, with the addition of visual floaters, and an increase in the intensity of the fatigue. Once again, this lasted for 2-3 months. Finally, in the last few months, all of the symptoms have returned once again (with the exception of headaches), with one more addition: very light intermittent tingly / numbness in parts of my left foot. I also have trouble concentrating sometimes.

I have have been to my GP many times, a neurologist whose opinion it was that I had no neurological deficit, and a sleep specialist. I also have been to an ophthalmologist about the floaters, who said she couldn't see the floaters through the slit lamp. I have had every blood test known to man, a normal head MRI in Oct. '04 , and a normal sleep study. Their latest thing was a Lyme test, from which I have yet to hear results. I am from KY, so Lymeseems. Does this sound neurological? Perhaps MS? Does it sound consistent with Lyme? The sometimes cognitive symptoms scare me, as I am a lawyer, and I kind of need to be able to think. Any suggestions as to what I should do next?

Thanks

[sleepymoon]

Hello there,

I'm also glad I'm not alone, although I'd rather we'd all find out what is really going on.
For the past two months I have been extremely light headed, sleepy, lethargic and mild nausea.  For the past 3 weeks or so I've also started go get strong headaches along with the most uncomfortable pressure in my head and a tingly sensation similar to the one you get when your arm falls alseep.  
I've been to my PCP who said I might have a mild ear infection and prescribed antibiotics,  then it was to the ENT who prescrived Ativan along with nasal spray "just in case" it was due to my sinuses...finally I got an ENG and I should see the results this wednesday.  If this fails then I'm off to the Neurologist because I'm starting to freak out thinking it might be a tumor.  I just want to feel normal again!
Sorry....needed to vent.

[Klinktc79]

Other symptoms that I forgot to mention are that, during the stretches when I am not feeling well, I will wake up almost every night with the pinky and ring finger on my right hand numb. If I shake it out, it goes away.

Also, and this one is new, I have been having some pain and tenderness around my ribcage, mostly on the right side.

Thanks again.

[Klinktc79]

I was given both ELISA and Western Blot, so hopefully one of them will be accurate. I keep worrying about MS, but with a clean MRI 3-4 years in as well as a normal neurological exam, I continue to be told that MS is highly unlikely. What do you think the chances are that both the ELISA and the WB would give false readings?

[vickinok1]

Read up on Myasthenia Gravis.

[TinkerBee]

OMG! Your post could've been written by me...word for word..
I am experiencing the EXACT same symptoms as you are! I have had every single blood test known to man done, all come back okay. No Lyme, No Rhumatroid Arthritis, No Lupus...*sigh*...

My next BIG test in an ENG or EMG (not sure which)..it's a balance test. Neuro now claims my dizziness can be attributed to inner ear. The ENT doesn't share the Neuro's thought..but prescribed the the test anyway.

Gosh..I sure would like to know what you find out..if anything..
I will do the same...
Oh yeah..one more thing..My real mother had MS...
Very curious...

Good Luck! Good to know I am not alone..but sorry you are experiencing the same thing!

TinkerBee
***@****

[Klinktc79]

Also, my GP told me that floaters were an entirely local symptom to the eye, and as such, they would not be caused by anything systemic, and by inference, they were not connected to any of my other symptoms. Can floaters be caused by or related to systemic disorders?