ChiroDoc,
Thanks for your advise. I have tried going to the Chiropractor
in the past and it has not help. I will give it a try again.
JennZA
We usually like to see spinal pressures at 10-20 cmH20, up to 25 if a patient is obese. A pressure of 8 is on the low side, but is not cause for great concern. Although you said the HA are not positional, I wonder if you have a chronic spinal fluid leak or some kind of Chiari malformation in which the lower part of your brain/brainstem is situated just a tad lower than normal patients and was pulled down a bit when you had you first spinal tap. An MRI should have picked this up if it was a Chiari malformation, but it's something to consider if you have neurologic symptoms such as slurred speech or difficulty swallowing as surgery can be helpful. If the pressure is due to a spinal leak then of course a blood patch should help.Some people have tried caffeine in the past.There is no pill or other medical therapy to "bring up" the spinal fluid pressure. In fact, some normal people have pressures that are on the low side.
I'm not familiar with the pain clinic at UAB, but the neurology dept is strong so I've heard. As you have tried "60+ meds" for pain, someone there should be able to go through them all with you and help suggest some kind of combination therapy that you haven't tried before. Topamax and IV depacon are things that are tried in this pain clinic as well as a DHE pump. Chronic daily headaches are very difficult to treat and I'm glad you're at a pain center you have confidence in. Best of luck with the nerve blocks.