MS, PLS,ALS???

[Tammy826]

My illness started 3 yrs ago with weakness in my legs, headaches,numbness in my feet, & overwhelming fatigue. I was sent to a neurologist & went for tests that include EMG(normal)ANA(normal) MRI w/wo contrast showed lesions in periventrical & subcortical regions, lymes (normal) B12(normal) all of these tests were done over a yr. ago. Now my sx are alot worse & include severe muscle cramps & spasms, can't walk over 100ft without falling(cane isn't helping), muscle twitches(you can see me toes ect move by themselves & watch muscles move under my skin), I can only smile on L side of my face & can only move my tongue L when DR. asked me to stick it out, Electrical shocks & vibrating feeling all over, nerve pain, bowel incontinance but bladder is retentive,dizziness, I feel like I have armour on when I breath or like I'm getting a bear hug, tremors when I use my hands ect, motion sickness, slurred speech, head tends to lean to the R., things like propping my head up on my arm cause it to shake & tremble. I The 1st neurologist said MS & sent me to MS specialist who didn't think it was MS (my symptoms were not as bad at the time over a yr ago but have significantly worsened). Now I can't work, don't have insurance & I'm in a rut as to what to do. Without a dx I can't get SS Disabiity & without the disability & medical aid I can't get a dx. My family Dr. thinks its neurological & sent me to a different neurologist who says I need another MRI & to call him when I find help with some sort of medical aid. In the meantime I've since had to go to the E/R & was basically dismissed once it was discovered that I don't have insurance. I had been watching TV when all at once I lost control of my bowels, hobbled to clean myself up then became very nauseated(not like a virus or eating bad food), then I couldn't move my L side at all (the R side had been the weakside until then) I couldn't grip my cane with my R hand either, felt like I was fighting to stay concious, my forehead started to twitch really bad then I couldn't feel anything at all. They had to carry me into the E/R , where the E/R Dr pinched me (I still couldn't move), everything sounded far away although I could faintly hear, I had a catheter & IV & didn't know it until I left. There were alot of tests ordered until the Dr. realized I don't have insurance & then all but a catscan went away & so did all nurses , Drs, ect. They wouldn't even raise the head of my bed up so I could vomit (husband was there thankfully), when the DR. came back 41/2hrs later I still couldn't move & he told me he was sending me home & that it was just anxiety. I have never had a hx of anxiety! Yes, I'm frustrated but I deal with it as best I can & am also seeing a psychologist just to take the whole anxiety dx off the table. I'm 39 almost 40 & have worked hard all my life & it literally feels like I woke up 3 yrs ago in someone elses body. I don't know & have never used drugs or drank. I do smoke but am in the process of quitting. I guess what I need to know is, could this be MS (although I didn't think it progressed this quickly) or could this be a neuro-muscular condition? ALS & PLS have been mentioned & would it make a difference in the EMG results now that the muscle twitches are so much worse. I sometimes feel I'm getting weaker by the day.I can no longer do the things I enjoy like gardening or being outdoors due to the heat. I have to have my Husband present when I shower due to weakness & falls (one incident I wasn't able to get out of the tub because my arms & legs wouldn't work). I'm afraid to ho;ld my grandbabies because my arms go dead without warning. Any advice or suggestions would be appreciated! Thank you!

[Tammy826]

bump again

[Tammy826]

Bumping this up & praying the good Doctor will answer!