MS vs. ALS

[Jannylynn]

Approximately 4 years ago I started experiencing symptoms of muscle pain, especially in my legs, with headache, fatigue, brain fog and fasciculations.  I saw a Neurologist, and after two MRI's and two MRA's with and without contrast, some lab work, and EEG, and an EMG, the only thing that was wrong was that I had scattered areas of increased white matter signal.  He believed that it was nothing other than nerves and stress, stating that he probably had something similar in his brain, and I moved on. I've been pretty fine since then.
3 years later, approx 6 weeks ago, I felt "flu-ish."  I saw a ARNP, and she tested me for flu, and it was positive.  (I was complaining of just fatigue, not sleeping well and muscle aches, tightness in the legs, etc.  She ran a CPK, and it was elevated at 170.  She attributed it to the flu, and suggested I have it rechecked in 3 months.
After not feeling any better 5 weeks later, I saw my doctor.  Same symptoms, better some days, worse some days.  She re ran the CPK ,and it's now 270 (I was sore that day; I had cleaned out my fish pond and my legs and arms were extremely sore from hauling buckets of water.)  She now wants to refer me back to a neurologist.
The fasciculations are worse now; but I'm scared to death of ALS, MS or whatever. I would just like to know, so that if I need to be on particular meds, I could get started, but it appears that I won't see a neurologist for 3 months!!!  I may stroke before then, not knowing what's happening.
Any thoughts?

[furbabies5]

My husband is being tested for possible ALS he has had an EMG and bloodwork with a cpk level of 731 our problem is the lenght of time between tests and results and ansewers from Drs. offce   any suggestions

[Jannylynn]

Thanks for your response.  I've been a respiratory therapist for almost 30 years, so i usually go to the extreme side of any possible diagnosis.
Patience is not one of my best attributes.
Thanks so much for your response.
God Bless!

[Dr Vinod]

Neurological conditions such as multiple sclerosis (MS) and amyotrophic lateral sclerosis (ALS) cannot be conclusive due to elevated CPK.
Have patience and consult a neurologist and do not come to diagnosis yourself.
As per as medication you can only take them with a prescription and you have to go for a neuroligist for this.
Take care!