Muscle Soreness

[Elizabeth]

Reading and responding to some of the other messages on this Forum prompted me to write my own message. Starting in January I thought I had the flu. I had all the classic symptoms; tiredness, weakness, achy legs and hands and overall yuck. The symptoms gradually decreased but then every once in a while I would get these strange shivers/tingling going down my spine out my arms and down my legs. My hands would be weak and clumsy. Gradually those went away and now I am left with a muscle soreness in my legs that is with me constantly. I have had this muscle soreness for 8 months, 24 hours a day, 7 days a week. I can't remember the last time I have moved my legs without them feeling sore. Sometimes (one or two times a week) they feel so weak, like i'm recovering from the flu, that I just have to sit and put my feet up because I don't feel like doing a thing.

I have done the ususal MRI of brain and spine, EMG, blood tests, Lyme tests - all negative. Physical exams are normal. I have left many a doctor stumped.

My neuro doesn't seem to think it's MS - but he can't be 100% sure. (He doesn't think its time for a spinal tap). The only other two symptoms I have is the occasional weakness/heaviness/clumsiness in my hands, but this lasts only a couple of hours and leaves. Also, I have been feeling lightheaded lately (but I also got a new perscription for contacts).

I'm sick of going to doctors - and one of them suggested that I could have had a viral infection in January and it's just taking an extra-long time to recover (hence the muscle soreness). What do you think? Does this sound like beginning symptoms of MS or just an extra-long recovery. Health wise everything else is fine. Should I start the round of doctors again or should I wait and see? Thanks in advance to any advice from anyone!!

[CCF Neuro[P] MD, RPS]

I try.

CCF Neuro MD

[Christine]

I know you do.  Air is everywhere.  In the clinic hands-on, at the office in-thought, on the phone making-sense, and on-line seeing-it-all.  However do you do it?

Doc Ayerman.  How's that for a novel name?  Characteristically speaking... Dr. Robert Paul Ayerman.  Ficticiously based upon fact.  My recorder is now in over-drive.  Ciao!

C.J.

[CCF Neuro[P] MD, RPS]

Every person's story is important.  The human in the race called the human race, depends of each story as each is unique.  As in a name, each to be rendered important and significant.

CCF Neuro MD

[Christine]

"He left the name, at which the world grew pale, to point a moral, or adorn a tale."  (Samuel Johnson - Vanity of Human Wishes)  "Imagination disposes of everything; it creates beauty, justice, and happiness... which is everything in this world." (Pascal)

C. J.

[Elizabeth - Original Poster]

I really don't understand what Christine's last few comments have to do with my problem of muscle soreness! I posted a question on this site because I am concerned, nervous, and a little bit scared about a problem I think is very serious. I am very interested in seeing what people have to say, what the doctor thinks and reading words of encouragement. I take my problem seriously and each time I see a response in regards to MY post, I hope it is something to help me. I'm getting tired of logging on and seeing this "jabbering" as Christine so eloquently put it, on my post!!!  If you want to chat about astrological signs, please don't do it on my post. Thank you.

[Irene]

Christine,

I can sympathize with you and your problems.  Sometimes the docs here need a mental break too with all the work they have to do.  You mention muscle weakness and clumsiness that comes and goes throughout the day.  I did not see if your doctors ran a MG Assay on you.  My doctors were very shocked to find mine positive after they ran it, they re-ran it and sent it to Mayo, and again it was positive for 2 of the antibodies.  I developed weakness in April, not debilitating, but enough and have clumsiness with hands especially the right hand and apparantly I have lost my gag reflex in the process. I also get parasthesias. Although they cannot dx me with MG as I have a borderline single fiber emg, I am waiting for a re-run of that torture test to see if anything changes.  I have had soreness in muscles occasionally as well.  That may be one option that has not been looked at.

Good luck.