I forgot some things -
sometimes my eyes seem to vibrate when I'm trying to read close up. I don't read much anymore.
I also had a one time occurrence of visual migraine symptoms without the headache.
I get occasional pain in my lower teeth, below the gums. That pain lasts a few days.
I'm sure I'm forgetting something. The symptoms list is pretty long and it's making me feel like I'm crazy.
I wish you could edit these things so I don't have to keep posting and looking like a fool....anyway.
-pain behind my collarbone
-day before I went to the hospital I had pain go up the front of my neck and under my chin.
-pain in knuckles sometimes
-sore scalp sometimes
-doc thought I was hypoglycemic but I thought that was because of the glucose tolerance test.
I hope that's all.
i guess no one looked at this post but here's an update anyway.
i have been diagnosed with a hiatal hernia, a PFO and a connective tissue disease.
That's sounds awful! I get strange pains, too, but not as severe or persistent as your's. Do you know about allodynia? I just discovered it when searching for answers to my strange pains. It sounds like something you might want to look into. I got a lot of information on it from ivilliage.com.
Also, it sounds like it has some symptoms in common with fibromyalgia.
Wishing you luck,
I'm ptetty convinced you have Fibromyalgia...........I share most of your symptoms and have for 30 years now.........have you read about it?
ive been going to doctors for years,with all of the same symtoms.They told me i have fibromyalgia,30 tears now and getting worse.30 years ago i described it as movable pain,that sometimes would stay lodged in my shoulder blades,but then out of nowhere i couldnt walk on my feet ,then it would go away and my upper body will hurt all over.The past 8 years or so mi hold my left side and massage myselfon left around my ribs,my doctor also told me i have hiatel hernia,but when im in pain there or sternum i find it hard to breathe
Thanks for responding.
I'm on my second doctor since all this started. Just this week, after a year of trying, my current doctor has given up. He is of the belief that Fibromyalgia doesn't exist. He has said that I have some form of connective tissue disease but has no clue what. He basically told me that he gives up trying to figure it out. I'm extremely frustrated with the Canadian health care system in general.
I know something is wrong with me but blood tests and ultrasounds and whatever have all come back with nothing other than an elevated amylase level. The doctor said there is something wrong with my pancreas but what, he doesn't know. What are they teaching doctors in med school?!? He told me that maybe the next generation of doctors can figure out what's wrong with me. Two weeks ago, I had what felt like a gallbladder attack. He said it was my pancreas because the ultrasounds didn't show anything. I wanted to smack him. He also told me the specialist (rheumatologist) won't book my appointment because my case is so vague. What the hell is a specialist for then?
As of today, I'm having a constant cold sensation in my left knee, like cold water is flowing on it and a pain in my left abdomen. I feel pretty good otherwise.
I'm on a search now for a new doctor.
Thank you again for responding.
Hi...have u had ur labs checked lately?
Vitamin D.....B12 and minerals- calcium...magnessium and potassium.Oh, and have ur thyroid checked...free T3 and freeT4....not just T3/T4.....
Low levels can cause pain, twitching and many of the issues u described....it is not ur answer, but will help with some of it and help u to begin to feel better.
Have u had ne MRI's?
Best wishes on the new dr and I pray u feel better soon.
Hi. I know I've had numerous blood tests but I'm not sure of everything that was tested.
I haven't had an MRI, I have had a bone scan and a CT scan (abdomen). They came back with nothing. I have abdominal pains, right and left, all the time and no one can find anything.
Thank you so much for your thoughts.
Symptoms (not occurring all at once)so far are:
Nystagmus (not always but sometimes accompanied by vertigo)
Random pain in various places
Sore skin that feels like it's oversensitive or burning (comes and goes in various places, mostly on arms or legs)
Warm or cold sensations in knees and legs
Tonsiliths and PND
Sharp, shooting pains in various places
Hi...since I am not a dr...it is very diff to speculate, but I would be concerned and want an MRI of the brain done.
Some of ur symptoms lead me to believe it could be one condition, but u have a few symptoms missing and a few that do not fit.....so
I feel u need a really good NL and have a few MRI's to see what is going on.The PND explains the similarities.
Please update on ur progress-I am interested as to what this could be.
I can sympathize with you kbug. I too have been through many, many doctor's, with pretty much the same results, nothing! I have felt like screaming at the top of my lungs for the last 17 years. I get the same skin sensations and pain with it, in spots, parts of my body, or on my left or right side. I can't touch anything, the sheets, silk or otherwise, can't wear clothes. So many symptoms (more than you have listed, ie., thinking, focusing, dyslexia, bladder control), come and go. I have been tested for MS. Negative. One doctor thinks maybe Fibro, but 90% of suffers are women.
Don't give up. I don't think I'm dying. But my family thinks I'm crazy.
Good Luck. I'm praying for you, God Bless.