Neck-Tongue Syndrome?

[gnatrea]

From time to time when I turn my head I get a sharp pain in my neck/head.  The pain is usually behind my right ear right where my head meets my neck.  Seconds later my tongue goes numb.  From doing a little research online I discovered this is probably Neck-Tongue Syndrome.  However, no one ever says if this a serious problem that should be looked at or not.  It only happens a handful of times a year and after I stand still with my head down for a minute I am fine.  Could someone please supply me with some more information.

Thanks!

[talflen]

Do these episodes only happen when you all turn your neck or does it sometimes feel like an involuntary twitch? I also thought this was normal until I had a bad one in December and told my parents that I've been having them for as long as I could remember. I'm so happy I discovered this as my doctor was wanting me to get an MRI and I would like to avoid having it done if it won't show anything abnormal

[Irishkenya]

Thanks for having this dialogue. I am 26 and recently had an episode in from of my parents during dinner. They were shocked to learn that this had been happening to me since 3rd grade. I had always thought that my experiences were normal so I never discussed it with a doctor. Now I certainly will. Does anyone know if there is a surgery or medication that will fix the issue? It only happens a few times a year and only lasts a short while but it is very painful.

[hammie12345]

is their anything the doctors have confirmed? medications? tips? please anything!

[hammie12345]

i though i was the only one and ur comment caught my attention the most because u nailed  it!everything u described is what happened to me. i am crying as im writing because  i never knew what was wrong with me and i would tell ppl and they look at me like im a freak! omg thank u for writing! i feel so much stress of my back knowing im not alone.

[hammie12345]

i though i was the only one and ur comment caught my attention the most because u nailed  it!everything u described is what happened to me. i am crying as im writing because  i never knew what was wrong with me and i would tell ppl and they look at me like im a freak! omg thank u for writing! i feel so much stress of my back knowing im not alone.

[Davi77]

I too have these symptoms, i didn't realise anyone else did, so actually i find that reassuring.  I started with the symptoms at about 13 and was concerned so mentioned it to my GP who gave me an explanation that i was catching a nerve on rotation of my neck.  But i don't think she appreciated how high up my neck the symptoms were.  I also get a sharp, electric shock- type pain that radiates upward to my scalp and round my jaw and my tongue.  I am 35 now and the 'attacks' have got better since i have become more aware how i cause them.   I am also a physio which helps with my knowledge of anatomy and posture.  I find my attacks happen when i rotate my head when i am not paying very good attention to my posture and i am poking my chin out.  Of course you can't check your posture 24/7 so it still happens, but less often.  I find that i have very active trigger points in my capitus muscle, which on pressure gives me a vague version of my symptoms, but on trigger point release improves my symptoms.  I think that physiotherapy has it's place in helping manage these symptoms, but now i have read this thread i am going to see my GP! I know that i too am hypermobile too and perhaps i need a better medical opinion!! If anything but to check that i am managing things ok and applying pressure around that area is a good idea.