I have similar syptoms. white spots on the bain in my MRI, dizziness, reading coprehension, memory loss, loss of strength on limbs, muscle spasms that mimic turrets but i dont have that. I was hit by a car 6 years ago while i was riding my bicycle. I flew 20 feet with my bike and landed on my head and then body. I broke my back, shoulder, damaged neck back and head. Thos went untreated for 6 years due to monetary problems but going to have testing done on my memory and hopefully brain rehab.
I know how frustrated you must feel going from being able to do everything to being limited in what you could do.
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Aliyah
I live in the South and grew up here. My Nero said very unlikely I have lymes. I have never been bitten by a tick (that I know of). I cant understand why my doctor did not test my vision more, after all that is one of my biggest complaints! When I told him about it again he said I needed to see the ophtomologist. The whole fibromyalgia issue keeps coming up with my Nero so now he is sending me to another doctor. I have been to 7 DOCTORS and spent thousands of dollars. I can not under stand why I can not get any answers. I wonder if I should get a new Nero.
What tests are there for Lyme aside spinal tap. Are there blood tests? How long after a tick bite does it develop and what if its left untreated? Scattered areas of nonspecific tiny white matter signals on T2 and FLAIR, no locations given, that be similar to lyme? Impression is Microvascular ischemia possible related
First of all, keep in mind that I am unable to diagnose you because I am unable to examine you, this forum is for educational purposes. The symptoms you describe are non-specific, but could be experienced by someone with multiple sclerosis (MS). The presentation of MS varies, but often presents with painful visual loss (optic neuritis) or isolated areas of numbness/tingling, each that resolve in 3-4 weeks. Fatigue is also a common symptom. The MRI findings that you describe may or maynot be significant. Non-specific white matter spots can be seen in a number of differnt processes such as migraine headaches, high blood pressure, MS and for unknown reasons. Lesions become more concerning for MS if they align with the corpus callosum and if they are perpendicular to the corpus callosum. More benign spots tend to be in the subcortical areas and in the centrum semi-ovale (area of white matter).
The concern of lyme disease is also significant. These type symptoms can be found in Lyme, but are not specific for it. Things that would increase your risk for having lyme would include, living in a lyme endemic area, history of a tick bite, circular rash, and joint pain. Your initial test for lyme was neagtive, which is reassuring, but they can sometimes be negative until the disease is treated.
With the symptoms you describe I would reccomend lumbar puncture (spinal tap) with the spinal fluid sent for Tourtelotte panel, oligoclonal bands, Kappa Free light chains and Lyme IgG and IgM (talk to your neurologist about these tests). I would also recommend visual evoked potentials, that will test for prior evidence of optic neuritis (given your history of a blind spot).
If concern is higher for lyme due to risk factors mentioned earlier, I would recommend a trial on antibiotics and a possible SPECT scan.