Nerve Damage, Poor Circulation, or What?????

[aimee]

Two years ago I began having strange shaking sensations in my pelvic and sacral areas.  When I would close my eyes to sleep, I would feel like I was swinging back and forth.  I was later told I had had an inflammation caused by sitting in the same position for many many hours and not moving around and that now the skin was "stuck" to the underlying bone and muscle and tugging on the nerves.  I had a series of seven cortisone injections.  All tests were normal, except a slight anemia--eleven.  I could get the shaking to stop if I moved around enough during the day but as soon as I sleep--there it is again.  When I first wake, it feels like a pulse on my tailbone, only very strong.  One hour on an exercise bike or an hour's walk and I feel better, only to have it come with sleep again?  I have a little pain in the area, but the pain feels like it's in the skin--nothing bad, though, and the pain does increase with movement.  Do you have any idea about what this could be?  I, myself don't believe I ever had an inflammation.  I do not feel normal pain and discomfort and did sit in one position for up to twenty hours per day.  It definitely seems to be something to do with circulation and nerves though.  Could it possibly be psychosomatic?  I have been under stress.  Any help or direction you could give would be very appreciated.  Thank you.

[Christie--To Aimee]

Hi Aimee--I had the same symptoms as you and mine turned out to be adhesions or adherent tissue.  I had irritated nerves and a problem with circulation as well as varying degrees of pain.  I, too, tried everything and nothing worked until I began cross-muscle massage.  This finally separated the adherent tissue and to date, it has not come back. It takes a while to work, though--maybe two weeks before you notice any improvement at all.  I hope it will help you and good luck!!!!!

Christie

[Karen]

I am a special needs bus driver.  For 11 years I have pivoted primarily on my right leg to get out of my seat.  I also use my right leg to hold me while I strap down wheel chairs.  I drove a bus to substitute for a regular route driver.  The bus seat would not go forward enough, or down enough to properly reach the gas or brake pedals.  I hurt my sacral area.  I then was instructed to drive again, substitute, about a month later. I used another bus that was not as bad , but was not adequate enough for me to reach the pedals.  I have been to the Doctor, but they want to adjust me.  I thing that, adjusting may help, but there is nerve damage also.  When I roll my hips back and for to help relieve the pain, my back/hip area pops.  If I do not pop it back then my left foot gets a bruise on it.  When it pops back the bruise goes away.  When my left foot is bruising I can barely walk.  I feel pain down both legs and at night I feel like pins and needles are poking my feet and fingers.  What could this be?  
  
Thank You,

  Karen

[kevin kelly]

18 months ago i had an anterior submuscular transposition done on my right ulna nerve due to compression. the problem still has not been corrected. Recently i've been diagnosed with mononeuropathy multiplex. I have a very complicated elbow due to professional armwrestling. My question to you is there any way to locate the compression with out further surgery? also a nerve conduction velocity test or inching method was done recently, still no luck. What exactly is mononeuropathy multiplex and the treatments involved?

[kevin kelly]

18 months ago i had an anterior submuscular transposition done on my right ulna nerve due to compression. the problem still has not been corrected. Recently i've been diagnosed with mononeuropathy multiplex. I have a very complicated elbow due to professional armwrestling. My question to you is there any way to locate the compression with out further surgery? also a nerve conduction velocity test or inching method was done recently, still no luck. What exactly is mononeuropathy multiplex and the treatments involved?

[Aimee to Lotsof Exercise again]

Saw the neuromuscular specialist and he said I had irritated nerves, from what he was not sure, but they were simply little sensory nerves in the skin and muscle sheathing.  The spinal nerves are fine and there is no inflammation, etc.  He said I could go on and do whatever I wanted to do--exercise, etc., said I could irritate it but would not hurt it and that it WOULD go away in time--how much time, he could not say either.

Mine also came during a period of high stress and I find when I worry, I, too am worse. I have the EXACT same symptoms the vibration, creepy crawling feelings, etc. and they are under the skin.  But I get on a mountain bike or treadmill and I don't feel them at all.

I can fall asleep because I am dead tired at the end of the day but relaxing is tough--then it just gets worse.

I, too, have never had muscle weakness, atrophy, numbness, clumsiness, etc.  I suppose the best is not to get obsessed with it and just forget it, but as you know that's hard when it feels so lousy.

Thank you for sharing your symptoms and a some of your history.  I know you made me feel a lot better and who knows how many others out there we don't know about?  Thanks again.

[Lots of exercize again]

Hiya, yes exactly - here is the rub with this. It affects me mostly at rest. I have no problems when exercizing or when being active...it is when I am quietly working in my office or kicking back at night at the end of the day is when it seems to be the most bothersome. Also, worrying about it, which I did much earlier in this 8 month process, did not help either. I kind of have finally let it go - after a couple of normal neuro exams from very competent guys - and that helped, too. I think lots of folks get themselves caught in a cycle of diagnosis where they become obsessed with it and can't HEAR their professionals any longer.

Just to give you a bit of history, this all started in a very stressful period in my life - I moved to another state, bought my first house, got a new boss, moved my offices, etc... all in a one month timeframe. I also had severe back pain, that I was very worried about because I have never which I was being worked up for, and then out of the blue this twitching - more muscle "flutters" is what I call them as they usually are more than 1 in a sequence in the same place, creepy crawly feelings, feeling irritated UNDERneath my skin, pains here and there (no cramping just little pains and burning), vibrating, tingling, etc... I think maybe a virus just irritated my nerve system and this is the residual from that.

Drink lots of water, stay away from caffeine, gets rest and don't stress. Also, seek out a neuromuscular specialist - easiest way is to call information and find out the number for the MDA clinic in your area. Schedule your appointment with them...you'll probably have to wait about 1 month, but it is worth it. These guys deal daily with the more sinister illnesses that cause some of our symptoms so they will be able to assess what is happening with you with the greatest of expertise. In the absence of weakness, or muscle atrophy and/or noticeable muscle loss like clumsiness, etc... you are probably just suffering a benign nerve irritation.