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Nerve Damage, Poor Circulation, or What?????

Two years ago I began having strange shaking sensations in my pelvic and sacral areas.  When I would close my eyes to sleep, I would feel like I was swinging back and forth.  I was later told I had had an inflammation caused by sitting in the same position for many many hours and not moving around and that now the skin was "stuck" to the underlying bone and muscle and tugging on the nerves.  I had a series of seven cortisone injections.  All tests were normal, except a slight anemia--eleven.  I could get the shaking to stop if I moved around enough during the day but as soon as I sleep--there it is again.  When I first wake, it feels like a pulse on my tailbone, only very strong.  One hour on an exercise bike or an hour's walk and I feel better, only to have it come with sleep again?  I have a little pain in the area, but the pain feels like it's in the skin--nothing bad, though, and the pain does increase with movement.  Do you have any idea about what this could be?  I, myself don't believe I ever had an inflammation.  I do not feel normal pain and discomfort and did sit in one position for up to twenty hours per day.  It definitely seems to be something to do with circulation and nerves though.  Could it possibly be psychosomatic?  I have been under stress.  Any help or direction you could give would be very appreciated.  Thank you.
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Avatar universal
thanks for talking to one another.

CCF Neuro MD
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Avatar universal
Thanks so much for your comment!  I will reduce my exercise time and see if this helps because I have the exact same symptoms as you.  Thanks again!  Will let you know how it works out.

Aimee
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Avatar universal
Thanks so much for your comment!  I will reduce my exercise time and see if this helps because I have the exact same symptoms as you.  Thanks again!  Will let you know how it works out.

Aimee
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Avatar universal
You excercise 3-4 hours per day?!? I have been told by one of the top neuromuscular specialists in the country, head of the MDA Clinic in San Francisco and Chairman of Neurology there,  that twitching and "over active" muscular activity - 2 most common causes are 1) over exercise and/or 2) muscles that can't relax fully.

I have twitching, shakiness under the skin, "creepy crawly" feelings under my skin and nerve irritation for over 8 months now...when I run 30 minutes on the treadmill I feel great during it, but I know that I WILL pay a little higher price post workout in that all my symptoms are worse...I deal with it because the exercise is important to me...but 3-4 hours per day seems excessive and may be causing your problem, or at least exacerbating it.

Just a thought.
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Avatar universal
I was thinking about what you wrote and it may be causing my problem.  Like you, I feel great WHEN I'm exercising--completely normal.  It's when I'm STILL that I have my problems.  It does feel like nerve irritation or like popcorn under the skin.  Mine gets a LOT worse when I sleep, no matter how I felt during the day.  Don't know if you experience this or not.  If you read this again, could you let me know?  I'm not really an exercise nut--30 to 45 minutes perday would be enough, but I exercise so much because that is the only time I feel really good--no irritation, etc.  I have been tested and they can't find anything wrong, so I will cut the exercise way back.  Thank you very much!
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Avatar universal
Dear Aimee:

Yes a nerve problem could come and go.

CCF Neuro MD
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