Neurological Concern (Inner Tremor, Sleep Shakes) Mystery Illness

[bartleyk]

I am a 29 year old, white male in Michigan, USA.

As many visitors here might experience, I have had an array of unusual neurological symptoms over the past 8 months.  I have seen several doctors and specialists (including second opinions) to include neurologists, infectious disease docs, etc.  I have had pretty much every test under the sun (HIV, MRIs, EMGs, EEGs, Sleep Studies, Western Blot, and the list goes on and on) and everything has come back normal except for 1 and I will go into that further down.

Ok, so let's get on to my symptoms.  At times I have this feeling of an inner tremor of sorts.  It is real hard to explain to someone who hasn't felt it but I would correlate it to having an extreme feeling of a caffeine buzz.  I actually feel my entire upper body tremor internally for a period of time and then as mysterious as it appears it just goes away.  There is really no set schedule on when it comes and goes other than at night which I will get to next paragraph.  It thus far comes and goes randomly but appears to be coming on more frequently as of recent.  The odd thing is that if my wife touches my arms or stomach or chest, etc., she cannot feel a tremor type sensation, I only feel it internally.

Having said that, at very minimal times will I actually notice a difficulty holding my hands stable if I try to hold them in a certain, unrelaxed position.  For example - if I try to hold the phone to my head at just the right angle, sometimes my hands will tremble trying to hold it, but at other times, no problem at all.  I only have the problem when I have the internal tremor but most of the time I have the inner tremor I still don

[Ellla66]

Hi,I experience all of those  symptoms mentioned here on site, first docs were saying its anxiety/depression, there are months horrible but then wears off to come back again, amitriptiline helps but in a few months so im even not sure how much exactly it does the job,once treating anaemia(iron only) helped just slightly,once they suspected parathyroide problem(but specialist refused to see me and only adviced doctor to give me 3 months calcium treatment,recently reumatologist gave me diagnosis of fibromyalgia.im 49 and symptoms were ongoing and changing their variety and wideness since i was 42 when i also had serious vision dizz headaches and migraines and periodes of  absence ..but eeg did not confirmed suspected epi..either.
What i personally think this is progressing in one way or another and i suppose this is a defensive mechanism of my body responding to something bad creating like eg cancerous,like it would have developed already till now IF my organism did not fight, but is fighting on all different fields neurologically,etc. This finromyalgia syndrom(a group of symptoms) is in my opinion and experience(how does it feel like) ONLY  masking up some underlying real cause.i wish i could tell more but dont know anything yet.

[DGincleve]

I am convinced (at least in my case) this tremor is the result of mineral deficiencies.  I experienced the symptoms as most of you described for about a week. What a terrible experience. When  I had success with the magnesium/zinc, I figured that was part of the solution and not just a temporary aid.

I believe I was over-hydrating and depleting my body of minerals.  

Now, I drink only enough fluids to keep my urine slightly yellow. That is consideired to be slightly dehydrated.  If it's clear, I can't tell if I'm over-hydrated. I'm taking a multi-mineral, multi-vitamin, potassium and magnesium/zinc.   With the exception of last night (I forgot, but no relapse) I've been taking the magnesium/zinc.  I'm also drinking San Pelligrino mineral water, it has the highest mineral content (best deal at Trader Joes)

My symptoms are all gone now, I feel back to normal.  Actually, I stopped drinking caffeine and alcohol too.  I feel better than normal, I'm not sure if the latter two have any impact, but I didn't want to put anything bad in me till I felt better.

Buy a book to make sure you don't go toxic on the minerals.  I think your body can handle a lot, with the exception of potassium. Do you homework and be safe. If I can help, ***@****

[Wiggypooh]

So very helpful. Balancing Minerals and water intake.

[DGincleve]

I'm new here. My symptoms are the same, and the medical establishment has done the same to me.  I think I know the cause for me.  My story is very acute.  Two weeks ago I was doing alright and then a train wreck, looks like its gonna cost me my marriage.  Yep, train wreck.  More importantly.

Success last night!!! Finally a bit of real sleep.  As soon as I went to bed, the tremble began.  I couldn't take it, so I got up grabbed my iPad and entered "I tremble when I rest" into the browser. It brought me to all of you.  Early in someone suggested magnesium/zinc. I took 266mg/10mg, respectively. I stayed on my feet for 15-20 minutes and laid back down. Gone!  

As I lay there with my ear on the pillow I hear the rapid tick, this time I didn't turn my head to make it go away.  I just listened, then I took a deep breath,exhaled and it slowed to a snails pace.  I bet it was slow enough that I could count the ticks, but I never got the chance.  It Stopped!

The tremble returned this morning, but today was the first day in two weeks I was able to function before 10am.  I was doing okay as soon as I got out of bed.  No issues bed this morning either.

I could not feel tremor today until I was sitting and had my fingers in my mouth.  Specifically, against my teeth, ever so faint, there it was.  I tried to tune in to it again a few hours later in the same manner but couldn't pick it up.  I am by no means out of the woods.  

Here is my story.  I drink more water than most people.  About a month ago, I began to drink even more water.  Two Sundays ago, midday, I was napping when I noticed my heart rate was picking up speed, its about 57-59 resting.  By the time I put my HR monitor on I was at 162 bpm.  EMS, hospital over-night. The following week was hell.  Full  of dizzy spells, irregular heart beats up/down, nausia, death warmed over.

I vacated my house thinking mold.  The next day I was better until the evening.  That was my first tremor.  I was on my way to my cardiologist (incidently, he said my heart is in good shape), I called with some symptoms and he directed me to the ER.  The results of the diagnostics were the same as yours.  Diagnosis, Anxiety/panic attacks.

I slept at a third location for several nights--so its not mold spore.  

Today, I've taken supplements.  Between the first and second attempts to find the Tick against my teeth, the only thing I consumed was a small bottle of mineral water.

Both times when I was in the hospital, my potassium was low.  Remember from school, the sodium-ion pump?  We are  basically a chemistry set wrapped in skin.

Here is what I believe happened to me.  Drinking excessive water over time, I depleted the vitamin and mineral stores in my body.  When I ran out of a certain something or combination of somethings, my heart reacted, then the rest of my body.  I've had the tremble for a week.

So, now I have limited success magnesium/zinc both last night and today.  But, if its not enough to mange the tremble and build up a storage supply, the tremble will just come back.  And of course, that's only two of many  minerals I need to restock.

So, since yesterday, I only drink enough fluids to keep my urine pale yellow.  If clear, I can't tell if I'm over-hydrating or not, so I accept slightly dehydrated.  I was not taking my multi-vitamin lately, so I bought both it and a multi-mineral today, along with the mineral water.

I felt pretty good all day, just as I write, I feel it in my chest so I will attend to that.

I would appreciate anyone's thoughts and insights. 9sorry if this is posted twice, I'm blog challenged)

[JannaMorrell]

I see its been 4 years since you wrote this but with someone else's experiences and yours combined, I am wondering if the imbalance with drinking too much water was from too much iron in your water?  Hemochromatosis.  Too much ferritin IRON  was the diagnosis of  
toby1101 .

Maybe the way you synthesize Iron is to add other minerals which balance it out (I have no idea though), like perhaps Magnesium and zinc!  I'm interested in an update!

[JannaMorrell]

I have these same tremors and we have a well (living in Wellsville that sounds sort of ironic!).  Recently the smallest filter got clogged so my husband took it out for a while and brought it up to clean.  I soaked it in CLR for two days and it finally cleared all the IRON in it.  It makes sense that too much Iron not only tastes bad but could be the culprit!

[DGincleve]

Maybe iron, who knows.  I have city water but predominantly drank spring water at the time.  18 months ago I installed a RO filter under my sink.  I just posted an update of my status to the original post.

[silverill]

Been researching and it seems like I might give Chinese medicine a go!!!! tryhttps://sites.google.com/site/tcmstudentweb/home/herbs-ii/substances-that-extinguish-wind-and-stop-tremors.

[silverill]

I do believe that these inner tremors are caused by stress, toxic buildup, diseases and or static electrical procedures at hospitals EKG Stress Test etc.  I am no doctor but I have been suffering with this problem and have noticed that when I sleep earlier like 8pm instead later I notice it is a lot less severe or bailey noticeable when I wake.  I also take 1 vitamin pill and a half glass of water before bed which seems to help too.  I still haven't come up with a solid solution yet and have recently tried a 3 day water fast that didn't help with the tremors.  I am going to attempt a 3 Dry fast to see if that will rid it.  Also going to try 1 mile a jogs a day a few hours before sleep.  If anyone has any solid solutions please share!!!!!!

[bluebandit28]

hi tom...ive been suffering from the same condition exactly and two days ago was just prescribed propanol but ive been too scared to take it but after reading this im going too.....how are you doing now...?