Neurological Concern (Inner Tremor, Sleep Shakes) Mystery Illness

[bartleyk]

I am a 29 year old, white male in Michigan, USA.

As many visitors here might experience, I have had an array of unusual neurological symptoms over the past 8 months.  I have seen several doctors and specialists (including second opinions) to include neurologists, infectious disease docs, etc.  I have had pretty much every test under the sun (HIV, MRIs, EMGs, EEGs, Sleep Studies, Western Blot, and the list goes on and on) and everything has come back normal except for 1 and I will go into that further down.

Ok, so let's get on to my symptoms.  At times I have this feeling of an inner tremor of sorts.  It is real hard to explain to someone who hasn't felt it but I would correlate it to having an extreme feeling of a caffeine buzz.  I actually feel my entire upper body tremor internally for a period of time and then as mysterious as it appears it just goes away.  There is really no set schedule on when it comes and goes other than at night which I will get to next paragraph.  It thus far comes and goes randomly but appears to be coming on more frequently as of recent.  The odd thing is that if my wife touches my arms or stomach or chest, etc., she cannot feel a tremor type sensation, I only feel it internally.

Having said that, at very minimal times will I actually notice a difficulty holding my hands stable if I try to hold them in a certain, unrelaxed position.  For example - if I try to hold the phone to my head at just the right angle, sometimes my hands will tremble trying to hold it, but at other times, no problem at all.  I only have the problem when I have the internal tremor but most of the time I have the inner tremor I still don

[Itsreal222]

Don't know if I can help but I have felt the same sensations during times of anxiety. Also could be related to specific medications. Have you been to a neurologist that specializes in movement disorders? Many local neurologists won't know what's going on and it seems like you need to see a specialist that deals with movement disorders. Or it could be anxiety if you have anxiety. I know I felt that sensation in my legs and it also feels like a buzzing sensation.

[still_here]

I can so relate. Iv got so many strange neurological issues going on that I think it's all in my head..lol..no seriously, mine are, lightheadedness,  dizzy spells, eye focus, flight or fight feelings, brain zaps, brain waves, pressure feeling  behind eyes and top of head..Ridgelike lumps on skull. Nd also the tremors inside the head and so.etimes body but mistly head. I'm sure I'm missing more symptoms. Been to my GP, ENT, DERMO, not really any answers except ETD. I'm at a loss of what to do..

[madamaGog]

yes

[lizgo]

I have been experiencing tremors for four years..just before waking and first few minutes its verging on seizure with my head feeling  like its stuck in a vice..i recieved a whole heap of vaccines for work four years ago..im really suspect on this as the cause as i felt horrible all day everyday for 12 months afterwards and fine prior.

ive spent years taking every conceivable vitamin mineral remedy and  find a couple of cups of chamomile tea before bed is .very relaxing..and sometimes stops it...i also find staying clear of any gluten helps i dont know why though..has anyone else ever had any jabs?

[Nic1968]

Wow - I am SO glad that I found this blog.  I have felt so alone and helpless over the past six months.  

I returned from Cambodia in March sicker than hell.  Besides being careless with the water and what I ate over there, I also got bit by something that left a red circle around it.  It all started with diarrhea then evolved to flu like symptoms, severe internal shaking / convulsions, profuse sweating, weakness and pins & needles in limbs, burning throughout body, extreme joint pain (like fire),major tachycardia (racing heart), and CONSTANT vibrating in my limbs.

I have spent thousands of dollars on Emergency room visits, top UCLA doctors who don't have a clue, and hundreds of tests including a spinal tap & MRI's.  Nothing.  The only thing the doctors saw was a high ANA (anti nuclear antibody) number and an excess of vitamin B6 in my body.  

And every doctor has a different opinion:
Neurologist - this is "post viral neuropathy"
Rheumatologist - this is Fibromyalgia
Infectious Disease - "See a Neurologist"
Wellness Chiropractor - this is metals toxicity
Chinese Doctor - the virus is still in your body

I am currently on MANY vitamins, Propranolol for the tremors and tachycardia, amitryptaline for depression & nerve issues, and Gabapentin for the nerves.  Nothing has eradicated the vibrations in my limbs, although some days are better than others.  And some days I have just had enough and wonder where to go from here.  

Thank you for listening.  Any comments or suggestions would be appreciated.

[nadaC]

Have you taken Ciprofloxacin for any illness before, during or after your travels? Look up fluouroquinolones. And how they affect the body.  You could be "floxed"  

[nickname2010101010]

hope this may help ... read all comments.
Latent Tetany Syndrome from magnesium deficiency.
http://www.easy-immune-health.com/fibro-causing-vibration-in-body.html