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Numbness, burning, itching and tingling. I'm very scared
I am a 21 year old girl and I have not yet seen a neurologist or had an mri but am on the waiting list to do so. I have had burning, tingling and numbness moving around various places on my body for a few weeks now. I've also had pain above my eyes, normally just in left, but sometimes both and slightly 'cloudy' vision (though my optician says its perfect) I am suffering with aches and pains in my limbs, mainly at night and odd twitches and spasms in my legs and feet (though this isn't all the time) I am really very scared that I have ms and all this waiting and not knowing is the worst part. I'm not able to concentrate on all my work cause i'm so worried. Can anyone give me some reasurrance or just ideas on how to take my mind off all of this untill I know for sure? Thanks.
Hi there,
Wow. Lots of people with odd things going on here!
Well, im a 29 yr old female. I've had very odd sensory issues for over 4 years now. It started with me bending over and getting pins and needles in my legs, then weird chills on my shins. Had full blood work and an mri of the brain and spine ct and was discharged with nothing wrong.
My symptoms continued and more came. I got burning sensations, or like id scalded myself, but in fact i'd done nothing! Could be a tiny patch like 1cm round or an area as big as my hand. Weird. I started getting tingles in my hands and pains in my wrists to my fingertips, which with time extended up my arms. Gradually my forefinger and thumb on left hand went numb on the right side of each digit. I had loads of bloodwork done, nothing.
I began getting tingles in my tongue, throat, chest, and then in my face, cheeks and my mouth. I was terrified.
In sept 2010 i was taken and admitted to hospital with stomach pain in the gallbladder area. All scans were clear...i still get this pain every single day and only last week had another scan which showed nothing, no stones.
Anyway, while in hospital, they told me i was hypocalcaemic, so my calcium level was low. Ok, why had it not been picked up on previously?
I went to the gp again, asked the have my calcium checked and it was low. Further tests revealed my vit d was also low and phosphates up. A test for parathyroid hormone was fine so i was then just given calcium supplements and told get some sun! (I'm in England, it's often rain!).
Anyhow, a blood test a month later showed my levels were dropping, despite the supllements. Dr was baffled. Finally i practicly begged for a referral to the endocrinologist and neurologist. The endocrinologist said i have hypoparathyroidism. She gave me another type of calcium and vit d and then about 3 moths after that appt, my pth levels dropped proving her diagnosis. Lovely. But....my sensory symtpoms werent improving. The pth issue was a red herring!
I last saw a neuro in nov, had a clear brain scan so he basicly told me he cant give a diagnosis and i have to deal with it.
I also had a lumbar mri for saddle paraesthesia which showed no bulging discs or sciatics. I was referred for physio for that which starts this week finally. Ive been seeing an osteopath but she hasnt been able to help much with that.
I explained to the neuro i had many symptoms, crawling, tingles, creeping, feelings of water dripping down my back and legs, burning, pains etc. Ive also had like a stiff tongue and problems swallowing which is terrifying.
Last saturday, after a long time with a slightly altered sensation, like a numb but itchy patch on my left shoulder blade, i woke up with full blown pins and needles there, going slightly just across the middle of my back and a weakness in my left arm. The dr said it may or may not be a trapped nerve and gave me nortriptyline. It does dull the sensation but its still there.
Today, my back was feeling tight, so i bent right down as far as i could for about 12 seconds to stretch and stood up. As i did so i noticed i really needed to pee. Just before that i hadn't need to! I wondered if it was my imagination and did it again. It happened again and i now have a weird feeling down below. The last time i bent over was about 3 hrs ago. I also found i had a bit of tingling in my buttocks which was more noticable when i sat on the loo.I remember having had a similar feeling in the groin after swimming a few times but it never lasted this long. I wonder if my back is so tight that im compressing and irritating nerves? As the lumbar showed i have no disc compression i suppose it can only really be a compression my muscle or something?
MS, for those who are worrying, is usually thought of as a cause if your symptoms last longer, like constant pain or tingling with no relief, for 48 hours or more. Some sites say 24 hrs but a neuro won't bother with that short time and generally more interested in those who have had symtpoms for weeks at least.
So, i guess the meaning of my post is, get your bloodwork done to check for vitamin and mineral deficiencies and don't worry about things like ms as symptoms are usually more localised to a particular area for a length of time rather than being all over for shorter times.
All the best to everyone xx
Wow. Lots of people with odd things going on here!
Well, im a 29 yr old female. I've had very odd sensory issues for over 4 years now. It started with me bending over and getting pins and needles in my legs, then weird chills on my shins. Had full blood work and an mri of the brain and spine ct and was discharged with nothing wrong.
My symptoms continued and more came. I got burning sensations, or like id scalded myself, but in fact i'd done nothing! Could be a tiny patch like 1cm round or an area as big as my hand. Weird. I started getting tingles in my hands and pains in my wrists to my fingertips, which with time extended up my arms. Gradually my forefinger and thumb on left hand went numb on the right side of each digit. I had loads of bloodwork done, nothing.
I began getting tingles in my tongue, throat, chest, and then in my face, cheeks and my mouth. I was terrified.
In sept 2010 i was taken and admitted to hospital with stomach pain in the gallbladder area. All scans were clear...i still get this pain every single day and only last week had another scan which showed nothing, no stones.
Anyway, while in hospital, they told me i was hypocalcaemic, so my calcium level was low. Ok, why had it not been picked up on previously?
I went to the gp again, asked the have my calcium checked and it was low. Further tests revealed my vit d was also low and phosphates up. A test for parathyroid hormone was fine so i was then just given calcium supplements and told get some sun! (I'm in England, it's often rain!).
Anyhow, a blood test a month later showed my levels were dropping, despite the supllements. Dr was baffled. Finally i practicly begged for a referral to the endocrinologist and neurologist. The endocrinologist said i have hypoparathyroidism. She gave me another type of calcium and vit d and then about 3 moths after that appt, my pth levels dropped proving her diagnosis. Lovely. But....my sensory symtpoms werent improving. The pth issue was a red herring!
I last saw a neuro in nov, had a clear brain scan so he basicly told me he cant give a diagnosis and i have to deal with it.
I also had a lumbar mri for saddle paraesthesia which showed no bulging discs or sciatics. I was referred for physio for that which starts this week finally. Ive been seeing an osteopath but she hasnt been able to help much with that.
I explained to the neuro i had many symptoms, crawling, tingles, creeping, feelings of water dripping down my back and legs, burning, pains etc. Ive also had like a stiff tongue and problems swallowing which is terrifying.
Last saturday, after a long time with a slightly altered sensation, like a numb but itchy patch on my left shoulder blade, i woke up with full blown pins and needles there, going slightly just across the middle of my back and a weakness in my left arm. The dr said it may or may not be a trapped nerve and gave me nortriptyline. It does dull the sensation but its still there.
Today, my back was feeling tight, so i bent right down as far as i could for about 12 seconds to stretch and stood up. As i did so i noticed i really needed to pee. Just before that i hadn't need to! I wondered if it was my imagination and did it again. It happened again and i now have a weird feeling down below. The last time i bent over was about 3 hrs ago. I also found i had a bit of tingling in my buttocks which was more noticable when i sat on the loo.I remember having had a similar feeling in the groin after swimming a few times but it never lasted this long. I wonder if my back is so tight that im compressing and irritating nerves? As the lumbar showed i have no disc compression i suppose it can only really be a compression my muscle or something?
MS, for those who are worrying, is usually thought of as a cause if your symptoms last longer, like constant pain or tingling with no relief, for 48 hours or more. Some sites say 24 hrs but a neuro won't bother with that short time and generally more interested in those who have had symtpoms for weeks at least.
So, i guess the meaning of my post is, get your bloodwork done to check for vitamin and mineral deficiencies and don't worry about things like ms as symptoms are usually more localised to a particular area for a length of time rather than being all over for shorter times.
All the best to everyone xx
Hi! I've just started in this site. Had you been diagnosed MS? I'm now in the same situation you were , having many ms symptoms and a bit scared.
How did you do?
How did you do?
I feel your fear.
I am new to forum and wanted to share with everyone because I have been struggling with this for over 10 years.
I have had cognitive dysfunction (memory loss, confusion) for over a decade, chronic neuropathic pain for 3 years, and now, for the last 2 weeks, random burning an ithcing throughout the day which starts and stops suddenly or just fades at other times.
Because of these ongoing mysterious health issues, I have had MRIs, lumbar punctures, and psychiatric evaluations. I went on anti-depressants for 3 years until my doctor and wife and I all agreed that I wasn't depressed and the top 20 anti-depressant and anti-anxiety meds seemed to have no effect (positive or negative) on my mind or body.
Anyway, after thyroid exams, and innumerable other blood work, I still don't know what is going on in my body.
One theory is that my illness is related to the Epstein-Barr virus.
According to my blood work, my body is convinced that it is under attack by EBV and it is in fight mode, even though I am exhibiting no symptoms of EBV. Supposedly, this is messing up my neurology. Does anyone else out there have any experience or information about chronic EBV? If so, I would love to read it.
I really don't know what to think so I am now focusing on learning to adapt well to my condition.
There is no doubt that their are millions of people suffering from undiagnosed illnesses. I used to know some statistics on this but I have forgotten them ;-)
I wish you well.
I am new to forum and wanted to share with everyone because I have been struggling with this for over 10 years.
I have had cognitive dysfunction (memory loss, confusion) for over a decade, chronic neuropathic pain for 3 years, and now, for the last 2 weeks, random burning an ithcing throughout the day which starts and stops suddenly or just fades at other times.
Because of these ongoing mysterious health issues, I have had MRIs, lumbar punctures, and psychiatric evaluations. I went on anti-depressants for 3 years until my doctor and wife and I all agreed that I wasn't depressed and the top 20 anti-depressant and anti-anxiety meds seemed to have no effect (positive or negative) on my mind or body.
Anyway, after thyroid exams, and innumerable other blood work, I still don't know what is going on in my body.
One theory is that my illness is related to the Epstein-Barr virus.
According to my blood work, my body is convinced that it is under attack by EBV and it is in fight mode, even though I am exhibiting no symptoms of EBV. Supposedly, this is messing up my neurology. Does anyone else out there have any experience or information about chronic EBV? If so, I would love to read it.
I really don't know what to think so I am now focusing on learning to adapt well to my condition.
There is no doubt that their are millions of people suffering from undiagnosed illnesses. I used to know some statistics on this but I have forgotten them ;-)
I wish you well.
I started having the same symptoms 2 weeks ago.
I was just relaxing and writing on the computer when a patch on my back went numb/tingly/slightly burning. I thought it was just a temporary pinched nerve but then it was all over my head and I had weakness in my limbs etc.
I went to the ER and they said it could be the "start of something neurological" and to go to my doctor. :(
I went and tomorrow is my ct scan.
I have had an odd virus cough thing for a month prior and a head swishy, odd ear feeling. But now the burning is really bad and I am terrified. It moves around my entire body. Mostly the head and back. the weakness is also there much of the time and I am very tired.
I have low iron but my doctor said that is not it.
I have an arthritis condition-ankylosing spondylitis (also an autoimmune disorder)
I am obviously terrified of it being MS or a tumor or something like that.
For those of you who already went through this can you please let me know what you found out. I wish this was more updated.
Thanks so much
God bless,
x
I was just relaxing and writing on the computer when a patch on my back went numb/tingly/slightly burning. I thought it was just a temporary pinched nerve but then it was all over my head and I had weakness in my limbs etc.
I went to the ER and they said it could be the "start of something neurological" and to go to my doctor. :(
I went and tomorrow is my ct scan.
I have had an odd virus cough thing for a month prior and a head swishy, odd ear feeling. But now the burning is really bad and I am terrified. It moves around my entire body. Mostly the head and back. the weakness is also there much of the time and I am very tired.
I have low iron but my doctor said that is not it.
I have an arthritis condition-ankylosing spondylitis (also an autoimmune disorder)
I am obviously terrified of it being MS or a tumor or something like that.
For those of you who already went through this can you please let me know what you found out. I wish this was more updated.
Thanks so much
God bless,
x
MEDICAL PROFESSIONAL
Hi,
There could be many causes of the symptoms mentioned by you. Lack of blood circulation, Anemia, Vitamin deficiency, Electrolyte imbalance, Anxiety, MS and many others. Please consult a physician and get routine investigations done till you wait for the neurologist appointment. Please keep yourself free from stress, take a good nutritious diet rich in fruits and vegetables and exercise regularly. You may feel better with the lifestyle changes. Hope this helps you. Take care and regards!
There could be many causes of the symptoms mentioned by you. Lack of blood circulation, Anemia, Vitamin deficiency, Electrolyte imbalance, Anxiety, MS and many others. Please consult a physician and get routine investigations done till you wait for the neurologist appointment. Please keep yourself free from stress, take a good nutritious diet rich in fruits and vegetables and exercise regularly. You may feel better with the lifestyle changes. Hope this helps you. Take care and regards!
Hi im louise,ive had all what you guys are going through..my face is burning eras eyes nose mouth had thrush also for 5 months..some days i feel like im going to faint but not quite..i was told it was streess as im under alot and the more i strees the more the feelings get worse..my bloods came back all good got doctors today for 30 some think time im geting worse by the day and im hoping today will get some thing moving..im not suffring from panic and have had to give up my job my kids are now seeming like they are unhappy i really need to find an anser soon xx
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