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Avatar universal

Can I paralyzed?

Dwi
I'm 17 years old.Last year, I had extreme pain in back, headaches, problems with walking, sometimes I can walk very good and suddenly I can't move my legs and hands. If I'm tired, I will be uncoscious and my body was stiff. Then, the doctor recommended MRI, ct scan, x-ray. I had hydromyelia at c6-c7 (length 8 mm). And I had surgery (decompression). Until 2 mounths, the symptoms were lost. I can life normal people. But, After 2 mounths the symtomps came back. I wrote very slow, I usually get headache, my foot's and hand's gone to sleep, Suddenly my body was stiff and sometimes my hands shake. Question:  
1. Can I get paralyzed?
2. Is  there any treatment?
3. How about theraphy?
4. Where is the best treatment?
5. Why did the symtomps come back?
6. Is there get in touch with my height before operation my hegh was 147 cm and now my high is 148 cm?
Thank's for the information! because it can help me
14 Responses
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Avatar universal
First of all, keep in mind that I am unable to diagnose you because I am unable to examine you, this forum is for educational purposes.      
   Hydromyelia is caused by a abnormal collection of fluid  in the central canal of the spinal cord (due to a defect in CSF flow) that causes pain, numbness/tingling and weakness in the arms/legs.  There are various ways to decompress this defect, but they are not always work permanently.  If the CSF flow becomes blocked again, your symptoms could return.  It is theorectically possible to be paralyzed by this, but often the symptoms improve dramatically with treatment (decompression, laminectomy, aspiration).  I would recommend an MRI of the brain and spinal cord with CINE flow study.  I would also recommend an EMG to evaluate your peripheral nerves/roots.  An EEG would also be indicated given your symptoms stiffening and shaking hands. I hope this has been helpful.
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Avatar universal
I know someone personally who took Jc's advice and it was a wrong move and gave her wrong hope, and she don't come back to this forum because of it. Do not tell me fiction sweetie, this is the real world. It's people like your comments that get involved that overrun forums. I refuse to go any further with this immaturity with you.
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Avatar universal
You have no idea how much your posts here made me feel better; I thought that everyone thought such a horrible thing about me.

And you can see, that both of them, ran ran ran right home with their absurdity.

Thank you, it means more to me, than you know.

JCmcc. (I am a guy) :)
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Avatar universal
First of all, I find it hard to believe that anyone would be naive enough to think that another poster was a medical doctor since it is very clear they are posting in the "Neurology Support" forum. It is also clear when an MD answers in the "Neurology" forum as his initials and MD are right there in the "from" column in plain site. Obviously JCmcc has more medical knowledge than most of us and I have read many of his posts. Should he act ignorant so as not to make anyone feel threatened? JCmcc - I hope that you continue to post. This site would not be worth visiting without postings like yours which are thoughtful and well informed. Good for you for giving people information about diseases that they have every right to know about. Whether it is the disease they actually have or not, they should be armed with the knowledge at least that can lead them to asking the right questions of their doctors, possible testing, getting a proper diagnosis and treatment. If it's not the right path, at least they looked into it and ruled it out! What's the harm in that? Obviously "Between" has been reading too much fiction :)
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Avatar universal
I too seek out posts from JCmcc and have found them to be informative and accurate according to my own level of knowledge.  I have not seen any ill will in any of his/her posts.  He/she seems to have a truly caring heart and tries to offer a little peace of mind through information to people who are very worried.  I appreciate JCmcc's posts and hope they will be continued.
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Avatar universal
Wait there, don't go away. I really find your posts very helpful and intelligent. Do not let one person push you away from helping others.
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Avatar universal
Thank you very much. I totally appreciate your sweet and gentle compliments.
I was just shattered by the accusation, especially, the last one.
I am in a form of neuro, I am not a medical doctor, and I went into my studies when I became obsessed with neurology after being attacked by that God awful Lyme disease.

People-in natural American neighborhood snoopyness, could not just take the answers but need to know everything about me.
So, it is hard.

I love these people because I know the horror, I remember when the soreness of fear would descend my arms and I just knew that there was something terribly wrong and no one believed me-no-not even my entire family.

And now, after fighting for myself and winning, I just want to lend a helping hand.

I need to be more careful with my words-but for heaven's sakes-I have been.

Thank you, so much, you have brigthened my day.

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Avatar universal
I have never said that I am a neurologist and, the site pays close attention to how we word our responses. They would contact me and remove me.

I am not a neurologist or a medical doctor, however, very educated on the topic due to my profession. I have given bad advice to no one. This is absurd. My disclaimer is in plain and easy to understand English and is not deceptive.

Shame on you for your presumptions. I am a suffering neurological patient, who when physicians had not answers, decided to study the hell out of each and every bit of neurology.

How do you know that I am not a medical student? You are foolish.

Get a life, grow up, and move on. Everyone that I have responded to on here is over the age of 25 and are full minded adults who are quite aware of how I respond and that my advice is not professional.

You need to seek help. I have been able to get 19 people previously diagnosed with other conditions their proper diagnosis of Lyme thru my group of Lyme MDs. Shame on you for your half cocked theory.

Helpful - 0
Avatar universal
Friends,
  I did not like the way that I was attacked in the last 2 posts. I would, however, like to comment on the ideas.
  I looked back at some of my posts and can see how my written knowledge can appear to seem medical.
  Due to my educaion and profession I cannot seem to find another way to word my responses.
  So that you can rest at ease I have decided to no longer post on the site. The stress that it brings me to have such awful, unfounded and untrue accusations is unsettling. It would have been one thing to say, "The way that you are wording this makes people believe that you are a doctor of neurology." would have been more applicable, but, to actually acuse me of trying to fool people into thinking that I am an attending neurologist is bizzare and hurtful, and would be pointless. Why would a person do that? What would they get out of it?
  I am actually torn up over the accusations. I have sacrificed my time and have given my free suggestions, could suggestions, lovingly.


I am sorry that I was misunderstood.

Good Luck!

Helpful - 0
Avatar universal
I read this forum often, finding it very educational. I have posted 2x's and received professional and educated advice from medical doctors. What I find appalling is the way you obviously know that some naive net users will assume from the way you respond to their posts that you are in some way or another qualified to give the type of advice that you give. You have other people commenting the same thing to you and yet you continue. You have every right to post to people as a non professional but you know darn well that your self imposed "disclaimer" is deceptive to many users of this forum, and causes them to believe you have the education/training to be giving the suggestions that you do.
I for one hope that you get your act together and realize that your "advice" may one day cause someone here hardship because they believe your advice to be from a neurologist. It is one thing to offer support to others struggling with neurological problems. It is quite another to knowingly continue to post in such misleading ways.
Shame on you!!

PS. What a shame that such a helpful online tool is being subverted by stupidity such as this.
Helpful - 0
Avatar universal
Whoa.

Patient just means the person asking the question, but  yes, I see how it can lead people down the wrong path.

Lost City Agent? If this were true there is no way that a person could know that, and, if it were true though it is not-it is none of your business.

I help, and that is that.

Lost City Agent hmmm....

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Avatar universal
See you address them as patient??? You need to stop this. You are giving the wrong vibe here. I was also told you are Lost City Agent who was removed from this list already. Is this true?
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Avatar universal
Dwi
No, the doctor never said me like that. The diagnosis from mri I Have syringo(hydro)myelia in c6-c7 the length (8x2x2)mm. And I got surgery at 16 august last year. The name of surgery is decompression. And the doctor said I will get paralyzed 5%-10% after surgery. 2 mounths after surgery, I can life like normal people. But the sytomps before surgery came back again. And I don't know what can I do for it. Please help me! How I know I have syrinx? What is the different syrinx and hydromyelia? Thank's for information!
Helpful - 0
Avatar universal
Hello,
  Your symptoms are very sad and unforunate. Did they ever look for a syrnx. What was the diagnosis?

Rg,
JCmcc.
Helpful - 0

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