Parsonage-Turner Syndrome

[SunnyOK]

Please, any help/treatment/success re: Parsonage-Turner Syndrome? We are desperate. God bless you. Sunny & Jim

[gazzagolf]

Hi i was struck down with sudden and building shoulder and neck pain that got worse over a period of days and didn't respond to analgesia pain lasted for a few weeks and was beyond anything i'd ever experienced. It then just went away but left me with loss of strength and sensation in my arms shoulders and also with some reduction in my breathing especially when lying down. I've been passed from pillar to post seen loads of consultants since May but i've been asking to see a neurologist since the day it started ( i finally see one tomorrow!!), i'm convinced its Parsonage Turner Syndrome but no-one takes self diagnosis seriously. I am now pain free but still have reduced strength and function but can find nothing about treatments regimes that help everthing seems to say it will get better in 2 years or so, surley there has to be more than that?

[Jeff308]

my husband was diagnosed with Parsonage Turner Syndome (5 weeks now) and altho the pain is gone, his right arm is completely useless. any blogs out there to communicate with other patients? we feel very alone...

[DrKalraMD]

Hi, please visit these websites for more information and prognosis related to parsonage turner syndrome.
http://www.****.com
http://www.****.net

“The overall prognosis for persons with PTS is good, as recovery of strength and sensation usually begins spontaneously as early as one month after the onset of symptoms. Almost 75% of persons with PTS experience complete recovery within two years. However, the period of time for complete recovery is variable, ranging from six months to five years. It seems that the delay in recovering strength depends on the severity and duration of pain, weakness, or both. Furthermore, patients with involvement of upper trunk lesions have the most rapid recovery. Although not very common, relapse might occur within a few months to several years after full recovery. In general, complete restoration of normal strength and function usually occurs within five years”. Taken from http://www.****.com